Progressive Familial Intrahepatic Cholestasis

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PFIC advocacy and resource network Inc. Improving the lives of patients and families worldwide affected by progressive familiar intrahepatic cholestasis. Advocate, support and keep up with all that is current with PFIC

Founded

2018

Facebook

942

X (Twitter)

82

Address

Stanton

Address: PO Box 551, StantonWeb: Sign in to see organisation websiteFacebook: pficawarenessX (Twitter): pficnetworkEmployees: 4Volunteers: 30Revenue: 365826ICO: 831084501

Progressive Familial Intrahepatic Cholestasis - PFIC Network Progressive Familial Intrahepatic Cholestasis PFIC Make an IMPACT. IMPACT is our project designed to prepare our community for patientcentered outcomes research. A major part of the project is the PFIC IMPACT Treatment Experience App. This innovative communitybuilt tool shares information about PFIC treatments and collects information about patient experiences.

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News about from their social media (Facebook and X).

Thomas

1. How can we better leverage the PFIC IMPACT Treatment Experience App to effectively gather patient experiences and improve treatment options for Progressive Familial Intrahepatic Cholestasis?

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Joanna

Thank you for bringing awareness to PFIC! Together, we can make a real difference in the lives of families affected by this rare disease. 💚✨

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Eve

2. What strategies can we implement to raise awareness and educate healthcare professionals about PFIC, ensuring that they are equipped to support affected families?

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Mark

I'm so inspired by the work you’re doing with the IMPACT project! Can’t wait to see how the Treatment Experience App will help improve patient care and outcomes. Keep up the amazing work! 🌟🌍

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