Progressive Familial Intrahepatic Cholestasis
PFIC advocacy and resource network Inc. Improving the lives of patients and families worldwide affected by progressive familiar intrahepatic cholestasis. Advocate, support and keep up with all that is current with PFIC
Founded
2018
942
X (Twitter)
82
Address
Stanton
Progressive Familial Intrahepatic Cholestasis - PFIC Network Progressive Familial Intrahepatic Cholestasis PFIC Make an IMPACT. IMPACT is our project designed to prepare our community for patientcentered outcomes research. A major part of the project is the PFIC IMPACT Treatment Experience App. This innovative communitybuilt tool shares information about PFIC treatments and collects information about patient experiences.
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Alliance/Advocacy Organizations Category
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