GIVING STRENGTH INC
Every dollar raised and donation made will make a major impact on future research for congenital muscular dystrophy subtype, SELENON.
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2022
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FULTON
Giving Strength Inc | SELENON-Related Myopathy Making treatment possible Giving Strength Inc. is a nonprofit organization supporting research and treatment for the rare genetic disorder SELENON Related Myopathy. What is SELENONRM. SELENON formerly SEPN1Related Myopathy SELENONRM is a group of rare progressive congenital disorders that impair the bodys ability to synthesize Selenoprotein N1.
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GIVING STRENGTH INC
Giving Strength was officially founded in 2022, but the Curley family’s fight began in 2020, when their son Finn was diagnosed with SELENON-related myopathy. Since then, and thanks to the unwavering generosity of our supporters, Giving Strength has raised over $1. 5 million to fund critical research.
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Nerve, Muscle, and Bone Research Category
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