
RUNX1 Research Program
813557785
2016
Santa Barbara, CA 93108
runx1-fpd.org
RUNX1Research
fpdaml
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News

Join Us for the 2025 Virtual RUNX1 Patient Meeting! • Friday, September 19 | 9am PDT • 12pm EDT • 5pm BST • Theme: Navigating New Frontiers This annual gathering is specifically designed for RUNX1-FPD patients and families. Whether you’re newly diagnosed, a family member, or a caregiver, join us to: • Hear clinical trial updates and research highlights translated into patient-friendly language • Learn wellness strategies tailored to RUNX1-FPD patients • Connect with others who understand your journey through shared stories and peer support Free and virtual – join from anywhere! Register now: https://runx1researchprogram.org/fRRPPatientMeeting2025 #RUNX1FPD #PatientVoices #RareDiseaseSupport (fb)

We're excited for the second RUNX1 X-Change of 2025! This is a special patient-only gathering where your voice takes center stage! Join Katrin and Amanda for an exclusive session designed to connect, share, and explore topics that truly matter to our community. Topic Announcement Coming Soon! 📅 Date: Tuesday, June 24th ⏰ Time: 7 AM PDT | 10 AM EDT | 3 PM BST 📅 Date: June 24th, 2025 Secure your spot now! Click the link to register: https://runx1researchprogram.org/fbRUNX1X-ChangeJune24 (fb)

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About the organization
- H12 -
Join us on our journey toend blood cancer. We are the only foundation in the world that supports patients with RUNX1FPD. Take part in shaping a future where blood cancer doesnt exist. For Researchers Learn More For Clinicians Learn More For RUNX1 Patients Family Learn More For Anyone Ready to Take Action Learn More What is RUNX1 Familial Platelet Disorder RUNX1FPD.
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