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RARE ACCESS ACTION PROJECT Providing Education Advocacy Access On Behalf of Rare Disease Patients and Families. RAAP is a coalition of life sciences and patient stakeholders that explores creative policy solutions to address structural issues in access and coverage. Our priority is to help ensure rare disease patients have access to the care and treatments that they need. Patient Stories Join RAAPs Patient Engagement Caucus RAAP IN ACTION INITIATIVES Action is a key component of who we are and what we do.