Founded
2018
Web
rareaccessactionproject.com
Address
Washington
Rare Access Action Project RARE ACCESS ACTION PROJECT Providing Education Advocacy Access On Behalf of Rare Disease Patients and Families. RAAP is a coalition of life sciences and patient stakeholders that explores creative policy solutions to address structural issues in access and coverage. Our priority is to help ensure rare disease patients have access to the care and treatments that they need. Patient Stories Join RAAPs Patient Engagement Caucus RAAP IN ACTION INITIATIVES Action is a key component of who we are and what we do.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
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We serve the rare disease community through access advocacy.
RareRising, formerly Upequity, is a registered 501c3 nonprofit that delivers patient-centered, evidence-based research, incubates emerging rare disease entities on their journey, and explores novel solutions to positively impact rare disease communities.
RARE CANCER RESEARCH FOUNDATION
Dedicated to finding cures for rare cancers by facilitating patient-centric research at Pattern.
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CANADIAN ORGANIZATION FOR RARE DISORDERS (CORD) (ca)
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RVA is Australia’s national peak body for Australians living with a rare disease.
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Discussions
Odpovědí v diskuzi
1
1. What innovative policy solutions can we explore to improve insurance coverage for rare disease treatments and therapies?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can patient stories be effectively utilized to raise awareness and advocate for better access to care for rare disease patients?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Absolutely inspired by the incredible work RAAP is doing to advocate for rare disease patients! Access to care is a right, not a privilege. Let's support this essential cause! ❤️ #RareDiseaseAwareness
Brooklyn Simmons
Product Manager
So grateful for organizations like RAAP that are fighting for the rights of rare disease patients! Together, we can drive meaningful change and improve lives. 🙌 #AccessMatters
Brooklyn Simmons
Product Manager
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