Rare Access Action Project Inc

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Founded

2018

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Washington

Address: 1012 14th St NW 500, WashingtonWeb: Sign in to see organisation websiteRevenue: 211979ICO: 824433613

Rare Access Action Project RARE ACCESS ACTION PROJECT Providing Education Advocacy Access On Behalf of Rare Disease Patients and Families. RAAP is a coalition of life sciences and patient stakeholders that explores creative policy solutions to address structural issues in access and coverage. Our priority is to help ensure rare disease patients have access to the care and treatments that they need. Patient Stories Join RAAPs Patient Engagement Caucus RAAP IN ACTION INITIATIVES Action is a key component of who we are and what we do.

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Alice

2. How can patient stories be effectively utilized to raise awareness and advocate for better access to care for rare disease patients?

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Deborah

So grateful for organizations like RAAP that are fighting for the rights of rare disease patients! Together, we can drive meaningful change and improve lives. 🙌 #AccessMatters

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Andrew

1. What innovative policy solutions can we explore to improve insurance coverage for rare disease treatments and therapies?

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Paul

Absolutely inspired by the incredible work RAAP is doing to advocate for rare disease patients! Access to care is a right, not a privilege. Let's support this essential cause! ❤️ #RareDiseaseAwareness

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Collected information

Data about organisation

Washington

Organisations from Rare Access Action Project Inc

1. Judicial Watch, Inc.

A conservative, non-partisan educational foundation promoting transparency, accountability, and integrity in government.

2. Nobel Prize Education Fund

The official Facebook page of the Nobel Prize.

3. White Coat Waste Project

Bipartisan campaign and government watchdog.

4. American Red Cross

We prevent and alleviate human suffering in the face of emergencies.

5. Humane World for Animals International

Formerly the Humane Society of the United States and Humane Society International.

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CORD is Canada's national network for organizations representing all those with rare disorders.

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