PHACE SYNDROME COMMUNITY INC
PHACE Syndrome Community | rare disease nonprofit
PHACE Syndrome Community is a nonprofit supporting families and individuals with a PHACE syndrome diagnosis, and researchers with an interest in #PHACEsyndrome. This is the official Facebook page of the PHACE Syndrome Community. www.phacesyndromecommunity.org
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ATLANTA, GA 30339
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phacesyndrome
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News
16 bře
RT @SPECNewsBrianne: First up is Mira. Her mom Whitney was told she would never walk or talk due to PHACE. The Pacheco family's determinati… (tw)
06 bře
What are the long-term outcomes of #PHACEsyndrome? Join a live Zoom meeting to hear the results of the most recent published #research. March 20, 8pm eastern. https://t.co/ZtwvgRy7bL #phace #birthmarks https://t.co/a4dCKH3XsR (tw)
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HOME ABOUT US PHACE SYNDROME RESEARCH PHACE BLOG COMMUNITY NATIONAL CONFERENCE RACE for PHACE CONTACT US See More You are not alone. Connect with other families and adults. What is PHACE Syndrome. Read the orgin of PHACE and how it is diagnosised.
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