PHACE SYNDROME COMMUNITY INC

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PHACE Syndrome Community is a nonprofit supporting families and individuals with a PHACE syndrome diagnosis, and researchers with an interest in #PHACEsyndrome. This is the official Facebook page of the PHACE Syndrome Community. www.phacesyndromecommunity.org

ICO

462061070

Facebook

1746

X (Twitter)

92

Address

ATLANTA

Address: 4514 CHAMBLEE DUNWOODY RD 450, ATLANTAWeb: Sign in to see organisation websiteFacebook: PhaceSyndromeCommunityFriendsX (Twitter): phacesyndromeRevenue: 56069ICO: 462061070

PHACE Syndrome Community | rare disease nonprofit HOME ABOUT US PHACE SYNDROME RESEARCH PHACE BLOG COMMUNITY NATIONAL CONFERENCE RACE for PHACE CONTACT US See More You are not alone. Connect with other families and adults. What is PHACE Syndrome. Read the orgin of PHACE and how it is diagnosised.

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From Social media

News about from their social media (Facebook and X).

Hannah

What strategies can we implement to raise awareness and understanding of PHACE syndrome in broader communities?

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Dana

How can we improve support systems for families navigating the challenges of a PHACE syndrome diagnosis?

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Jack

So grateful for this community and the amazing resources you provide! Let's keep spreading the word and supporting each other. 🌟 #PHACEAwareness

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Alice

I love what you all are doing to support families affected by PHACE Syndrome! Together, we can raise awareness and help those in need. 💖 #PHACEsupport

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