PHACE SYNDROME COMMUNITY INC
PHACE Syndrome Community is a nonprofit supporting families and individuals with a PHACE syndrome diagnosis, and researchers with an interest in #PHACEsyndrome. This is the official Facebook page of the PHACE Syndrome Community. www.phacesyndromecommunity.org
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ATLANTA
PHACE Syndrome Community | rare disease nonprofit HOME ABOUT US PHACE SYNDROME RESEARCH PHACE BLOG COMMUNITY NATIONAL CONFERENCE RACE for PHACE CONTACT US See More You are not alone. Connect with other families and adults. What is PHACE Syndrome. Read the orgin of PHACE and how it is diagnosised.
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From Social media
News about PHACE SYNDROME COMMUNITY INC from their social media (Facebook and X).
- PHACE SYNDROME COMMUNITY INC
- 2024-03-16
RT @SPECNewsBrianne: First up is Mira. Her mom Whitney was told she would never walk or talk due to PHACE. (tw) ... more
Liked (0) Commented (0)
- PHACE SYNDROME COMMUNITY INC
- 2024-03-06
What are the long-term outcomes of #PHACEsyndrome. (tw) ... more
Liked (1) Commented (0)Discussions
Odpovědí v diskuzi
1
What strategies can we implement to raise awareness and understanding of PHACE syndrome in broader communities?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can we improve support systems for families navigating the challenges of a PHACE syndrome diagnosis?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
I love what you all are doing to support families affected by PHACE Syndrome! Together, we can raise awareness and help those in need. 💖 #PHACEsupport
Brooklyn Simmons
Product Manager
So grateful for this community and the amazing resources you provide! Let's keep spreading the word and supporting each other. 🌟 #PHACEAwareness
Brooklyn Simmons
Product Manager
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Kendall Monroe
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A brilliant resource for anyone who wants to do good more effectively.
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Transparent, useful, and beautifully designed.
Jordan Blake
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Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!
Brooklyn Simmons
Product Manager
Transparent, useful, and beautifully designed.
Kendall Monroe
Product Manager
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