1P36 DELETION SUPPORT & AWARENESS

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1p36 Deletion Support & Awareness Support, Awareness & Education to improve the lives of individuals affected by 1p36 Deletion Syndrome

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264411797

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Bend

Address: 906 NE Greenwood Ave Ste 1, BendWeb: Sign in to see organisation websiteFacebook: 1p36DSAX (Twitter): 1p36dsaRevenue: 63315ICO: 264411797

1p36 DSA Support Awareness and Education to improve the lives of individuals affected by 1p36 deletion syndrome If you have a loved one affected by 1p36 deletion syndrome were here to help 1p36 deletion syndrome occurs in approximately 1 in 5000 to 10000 live births and 1p36 Deletion Support Awareness is honored to currently serve hundreds of families affected by this rare genetic disorder. We strive to reach the thousands more who live without a diagnosis andor are unaware of support available to them. If you or someone you know would benefit from our support services please let us know. What is 1p36 Deletion Syndrome.

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Isabel

2. What resources or support services do you believe are most critical for families navigating the challenges associated with 1p36 Deletion Syndrome?

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Peter

1. How can we enhance community outreach efforts to increase awareness and education about 1p36 Deletion Syndrome among healthcare professionals and families who may be affected?

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1P36 DELETION SUPPORT & AWARENESS

🧬 1 more week until registration closes for this years 1p36 Deletion Support & Awareness conference in San Antonio, Texas. Don’t miss out on… 📖 3 days of parent and professional speakers 🎠 a day at Morgan’s Wonderland 🏝️ a day at Morgan’s Inspiration Island 🕺💃 a dance party 💙💚 3 days full of 1p love. https://www.

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Pamela

🌟 Let’s spread the word about 1p36 deletion syndrome! Every share helps connect families who may be unaware of the support available. Keep up the amazing work! 💪❤️ #SupportAndAwareness #MakeADifference

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Julius

💙 Thank you for all the incredible work you're doing to support families affected by 1p36 deletion syndrome! Together, we can raise awareness and help those in need find their community. #1p36Awareness #Hope

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1P36 DELETION SUPPORT & AWARENESS

Today and tomorrow, 2 days left to register for the 17th annual 1p36 Deletion Support & Awareness conference in San Antonio, Texas. On fb. Click here to get your tickets -> https://www.

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