THE NATIONAL FRAGILE X FOUNDATION
News and information from the National Fragile X Foundation about Fragile X syndrome, FXTAS, FXPOI and the other Fragile X-associated disorders Since 1984, the National Fragile X Foundation has been providing knowledge, resources and tools to families living with Fragile X and the professionals support them throughout their lifespan. We focus on Advocacy, Education, Research, and Treatment.
Founded
2001
16984
X (Twitter)
2713
Traffic
557581
The National Fragile X Foundation | NFXF The National Fragile X Foundation EMPOWERING the Fragile X community with knowledge hope tools and resources like this short video explaining Fragile X . What Is Fragile X Syndrome. Fragile X syndrome FXS is a genetic condition that causes intellectual disability behavioral and learning challenges and various physical characteristics. Though FXS occurs in both genders males are more frequently affected than females and generally with greater severity.
From Social media
News about from their social media (Facebook and X).
We’re excited to share that Fragile X is once again included in the FY25 Peer-Reviewed Medical Research Program (PRMRP) funding opportunities. This continued inclusion is the result of ongoing advocacy and reflects the growing momentum behind Fragile X research. To support professionals interested in applying, we’re hosting an informational webinar with PRMRP Interim Program Manager, Dr.
Like Comment
Data about organisation
Birth Defects, Genetic Diseases Research Category
Organisations with similar rank to THE NATIONAL FRAGILE X FOUNDATION in category Birth Defects, Genetic Diseases Research
Alpha-1 Antitrypsin Deficiency is a genetic condition that may result in lung and/or liver disease.
10. Texas Health Research & Education Institute
Texas Health Resources is the health care system of choice in North Texas, improving the health and w.
11. THE NATIONAL FRAGILE X FOUNDATION
Since 1984, the National Fragile X Foundation has been providing knowledge, resources and tools to families living with Fragile X and the professionals support them throughout their lifespan.
The Glomerular Disease Study & Trial Consortium (GlomCon) is a new project with the goal to create enabling platforms for patients, doctors, & scientists.
13. Prader-Willi Syndrome Association | USA
We hope you will suggest the PWSA | USA facebook page to your friends.
WASHINGTON
Organisations from THE NATIONAL FRAGILE X FOUNDATION
1086. National Whistleblower Center
The National Whistleblower Center is the leading whistleblower advocacy organization.
1087. ALLIANCE FOR AGING RESEARCH
The Alliance for Aging Research is the leading nonprofit organization dedicated to changing the narrative to achieve healthy aging and equitable access to care.
1088. THE NATIONAL FRAGILE X FOUNDATION
Since 1984, the National Fragile X Foundation has been providing knowledge, resources and tools to families living with Fragile X and the professionals support them throughout their lifespan.
Empowering and coordinating global efforts for democracy in Russia International advocacy and justice | Think Tank | Community support.
VegFund empowers vegan advocates through grant funding and supporting effective outreach.
Similar organisations
Similar organisations to THE NATIONAL FRAGILE X FOUNDATION based on mission, location, activites.
Familial Dysautonomia (FD) Foundation, Inc.
Providing treatment & research for Familial Dysautonomia, a rare genetic disorder.
Canavan Research Foundation, Inc.
The Canavan Research Foundation is dedicated to eradicating genetic brain diseases, including Canavan, Alzheimer's, Parkinson's, and MS.
THE CLINIC FOR SPECIAL CHILDREN INC
A nonprofit comprehensive medical practice focused on treating & researching rare genetic disorders.
The mission of the Smith-Magenis Syndrome Research Foundation is to advance scientific research leading to innovative treatment options for people living with SMS.
Similar Organisations Worldwide
Organisations in the world similar to THE NATIONAL FRAGILE X FOUNDATION.
Parents Of Children With Special Needs Inc. (au)
Kiind supports families of children with disability, chronic conditions and developmental concerns.
THE CHILDREN'S RARE DISORDERS FUND LTD (uk)
The Children's Rare Disorders Fund is dedicated to curing childhood rare genetic disorders.
Fragile X Association Of Australia Incorporated (au)
We offer info & support to individuals & families impacted by Fragile X - Fragile X syndrome or the Fragile X Premutation Associated Conditions (FXPAC).
Interesting nearby
Interesting organisations close by to residence of THE NATIONAL FRAGILE X FOUNDATION
The Lancaster Cleft Palate Clinic is a not-for-profit organization dedicated to improving the quality of life of infants, children, and adults through comprehensive coordinated treatment of craniofacial conditions.
THE CLINIC FOR SPECIAL CHILDREN INC
A nonprofit comprehensive medical practice focused on treating & researching rare genetic disorders.
The Snyder-Robinson Foundation is a tax-exempt organization formed to advance medical and scientific.
Similar social media (19697)
Organisations with similar social media impact to THE NATIONAL FRAGILE X FOUNDATION
40792. YMCA of Middle Tennessee
At the Y, strengthening community is our cause.
40793. YMCA FOUNDATION OF MIDDLE TENNESSEE
At the Y, strengthening community is our cause.
40794. THE NATIONAL FRAGILE X FOUNDATION
Since 1984, the National Fragile X Foundation has been providing knowledge, resources and tools to families living with Fragile X and the professionals support them throughout their lifespan.
40795. Indigenous Women Rising
Working to make reproductive justice accessible for Native and Indigenous people.
40796. Cambridge-Isanti Arena Corporation
Live Streaming (and On Demand replay) of youth and amateur sports.
Similar traffic
Organisations with similar web traffic to THE NATIONAL FRAGILE X FOUNDATION
73848. THE NATIONAL FRAGILE X FOUNDATION
Since 1984, the National Fragile X Foundation has been providing knowledge, resources and tools to families living with Fragile X and the professionals support them throughout their lifespan.
73849. Undersea & Hyperbaric Medical Society
The Undersea and Hyperbaric Medical Society (UHMS) is an international non-profit organization serving members from more than 67 countries.
73850. Sno-Isle Libraries Foundation
Sno-Isle Libraries serves more than 800,000 residents in Washington’s Snohomish and Island counties through 23 community libraries, online services, and Library on Wheels.
Join us and make a difference for the future!
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Amid the challenges of lost SNAP benefits, it's inspiring to see food banks stepping up! 🚚✨ The Food Depot plans to expand distribution sites to ensure no one goes hungry. Together, we can support our communities in tough times! #FoodSecurity #CommunitySupport #PositiveImpact
New Mexico officials weighing options in advance of lost SNAP benefits
Yahoo
Like CommentInspiring news from New Mexico! 🌟 Shayai Lucero is heading to D.C. to advocate for the HEARTS Act, ensuring our schools are ready for cardiac emergencies. Let's support lifesaving measures that protect our children! 💖 #HEARTSAct #Advocacy #GoodNews
New Mexico advocate heads to D.C. to push for lifesaving legislation
American Heart Association
Like Comment