THE NATIONAL FRAGILE X FOUNDATION

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News and information from the National Fragile X Foundation about Fragile X syndrome, FXTAS, FXPOI and the other Fragile X-associated disorders Since 1984, the National Fragile X Foundation has been providing knowledge, resources and tools to families living with Fragile X and the professionals support them throughout their lifespan. We focus on Advocacy, Education, Research, and Treatment.

Founded

2001

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Address: 1012 14TH ST NW 500, WASHINGTONWeb: Sign in to see organisation websiteFacebook: natlfragilexX (Twitter): nfxfoundationEmployees: 9Revenue: 1802073ICO: 840960471

The National Fragile X Foundation | NFXF The National Fragile X Foundation EMPOWERING the Fragile X community with knowledge hope tools and resources like this short video explaining Fragile X . What Is Fragile X Syndrome. Fragile X syndrome FXS is a genetic condition that causes intellectual disability behavioral and learning challenges and various physical characteristics. Though FXS occurs in both genders males are more frequently affected than females and generally with greater severity.

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News about from their social media (Facebook and X).

THE NATIONAL FRAGILE X FOUNDATION

Thank you, ABLE Today, for supporting the Fragile X community as a 2025 NFXF Corporate Sponsor. #FragileXawareness #FragileX.

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Michelle

1. How can we better engage families affected by Fragile X syndrome in local advocacy and support initiatives?

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Margot

Just watched the "What Is Fragile X Syndrome" video, and it was so informative! Thank you for shedding light on this important issue and providing hope to those affected. Together, we can make a difference! 🌟

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THE NATIONAL FRAGILE X FOUNDATION

We’re excited to share that Fragile X is once again included in the FY25 Peer-Reviewed Medical Research Program (PRMRP) funding opportunities. This continued inclusion is the result of ongoing advocacy and reflects the growing momentum behind Fragile X research. To support professionals interested in applying, we’re hosting an informational webinar with PRMRP Interim Program Manager, Dr.

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Lucy

2. What are the most effective strategies for raising awareness about Fragile X syndrome within the broader community?

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Michelle

❤️ It's incredible to see organizations like the National Fragile X Foundation making such a positive impact! Your resources and support truly empower families dealing with Fragile X. Keep up the amazing work! 🙌

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