RARE IS BEAUTIFUL
In honor of Dee Dee Ingui, to find a cure for Peutz Jeghers Syndrome, which is a rare genetic disease.
ICO
475590895
2451
Web
rareisbeautiful.org
Address
Elmwood Park
Rare is Beautiful Thank you for your endless support. Welcome to Rare is Beautiful Welcome to Rare is Beautiful Our PJS family started here Our Mission Statement The mission of Rare is Beautiful is to raise awareness and find a cure for PeutzJeghers Syndrome. In addition we will also help families whose children are already stricken with cancer and others who are in need. Our mission will be accomplished through fund raising efforts resulting from various events.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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From Social media
News about RARE IS BEAUTIFUL from their social media (Facebook and X).
- RARE IS BEAUTIFUL
- 2025-06-12
It is with great sadness that we inform you that our Rare is Beautiful family member Jacob Correa has been called home. (fb) ... more
Liked (117) Commented (24)- RARE IS BEAUTIFUL
- 2025-05-06
I am extremely honored and grateful to have been selected as the 2025 UNICO National Joseph P. (fb) ... more
Liked (90) Commented (56)Discussions
Odpovědí v diskuzi
1
1. What innovative fundraising ideas can we implement to raise awareness and support for the Rare is Beautiful mission, particularly in relation to Peutz Jeghers Syndrome?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we effectively engage the community and share the stories of families affected by Peutz Jeghers Syndrome to foster greater understanding and empathy?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Your dedication to finding a cure for Peutz Jeghers Syndrome is truly inspiring! Thank you for all the hope you bring to families in need. 💙 #RareIsBeautiful
Brooklyn Simmons
Product Manager
Every step we take together brings us closer to a cure! Proud to support Rare is Beautiful and the incredible work you're doing for those affected by PJS. 🙌 #HopeForACure
Brooklyn Simmons
Product Manager
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