RARE IS BEAUTIFUL

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In honor of Dee Dee Ingui, to find a cure for Peutz Jeghers Syndrome, which is a rare genetic disease.

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Elmwood Park

Address: PO Box 551, Elmwood ParkWeb: Sign in to see organisation websiteFacebook: avadeegio1Revenue: 86587ICO: 475590895

Rare is Beautiful Thank you for your endless support. Welcome to Rare is Beautiful Welcome to Rare is Beautiful Our PJS family started here Our Mission Statement The mission of Rare is Beautiful is to raise awareness and find a cure for PeutzJeghers Syndrome. In addition we will also help families whose children are already stricken with cancer and others who are in need. Our mission will be accomplished through fund raising efforts resulting from various events.

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David

1. What innovative fundraising ideas can we implement to raise awareness and support for the Rare is Beautiful mission, particularly in relation to Peutz Jeghers Syndrome?

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Sarah

Every step we take together brings us closer to a cure! Proud to support Rare is Beautiful and the incredible work you're doing for those affected by PJS. πŸ™Œ #HopeForACure

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Martin

2. How can we effectively engage the community and share the stories of families affected by Peutz Jeghers Syndrome to foster greater understanding and empathy?

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Monica

Your dedication to finding a cure for Peutz Jeghers Syndrome is truly inspiring! Thank you for all the hope you bring to families in need. πŸ’™ #RareIsBeautiful

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