Founded
1990
862
Web
msud-support.org
Address
COLUMBUS
Home - MSUD Family Support Group MSUD Is A Rare Disease MSUD is a rare disease affecting an estimated 1 in 185000 infants worldwide. The condition gets its name from the distinctive sweet odor of urine and earwax in affected infants. If untreated MSUD can lead to developmental delays seizures coma and death. A strict diet and careful medical monitoring is essential throughout the lifespan.
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From Social media
News about MAPLE SYRUP URINE DISEASE FAMILY from their social media (Facebook and X).
- MAPLE SYRUP URINE DISEASE FAMILY
- 2025-06-15
Today, we honor and celebrate all the incredible dads in the MSUD community — fathers, stepfathers, grandfathers, and father figures who show up with unwavering love, patience, and strength every single day. (fb) ... more
Liked (1) Commented (0)
- MAPLE SYRUP URINE DISEASE FAMILY
- 2025-06-08
Last week, Dr. Karen Dolins, Research Lead for the MSUD Family Support Group, presented at Abbott’s Metabolic Conference in Columbus, Ohio. (fb) ... more
Liked (14) Commented (8)Discussions
Odpovědí v diskuzi
1
What strategies can the MSUD Family Support Group implement to raise awareness about Maple Syrup Urine Disease in communities and among healthcare professionals?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can we better support families affected by MSUD in navigating dietary restrictions and managing care throughout different stages of life?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
🌟 What an amazing initiative! Your support for families affected by MSUD is truly inspiring. Together, we can raise awareness and make a difference in the lives of these children! 💖
Brooklyn Simmons
Product Manager
👏 Thank you for all the hard work you do to support families dealing with MSUD. It's so important to bring people together and share knowledge. Keep up the great work! 🙌
Brooklyn Simmons
Product Manager
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