TALIA DUFF FOUNDATION INC

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Cure CMT4J raises funds to support the research, development, and production of a therapy or cure for Charcot Marie Tooth Disease 4J.

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2016

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IPSWICH

Address: PO BOX 588, IPSWICHWeb: Sign in to see organisation websiteFacebook: CureCMT4JVolunteers: 5Revenue: 91275ICO: 813019217

CureCMT4J | Advancing Treatments for Rare Diseases Rare diseases affect one in 10 people. Finding the cure for one can benefit thousands. CMT4J is a rare progressive neurological disease similar to ALS. CureCMT4J is a nonprofit created by parents of Talia a teenage girl with severe earlyonset CMT4J.

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Helen

1. What initiatives can be implemented to raise awareness about Charcot-Marie-Tooth Disease 4J and engage more people in supporting rare disease research?

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Julius

🌟 So inspired by the incredible work the Talia Duff Foundation is doing for CMT4J! Together, we can make a difference for those affected by this rare disease. Can’t wait for the Chase the Butterfly 5K! πŸ¦‹πŸ’ͺ

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TALIA DUFF FOUNDATION INC

CureCMT4J in the News. One more box checked on our way to a clinical trial. Rare Pediatric Disease and Orphan Drug Designations granted by the FDA.

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Stacy

2. How do you see community involvement playing a role in the funding and support for organizations like CureCMT4J in their pursuit of a cure for rare diseases?

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Ann

πŸ’– Let's unite to support the fight against CMT4J and raise awareness for rare diseases! Join me in registering for the 5K on May 4th β€” every step brings us closer to a cure! πŸƒβ€β™€οΈβœ¨ #CureCMT4J #ChaseTheButterfly

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