TALIA DUFF FOUNDATION INC
CureCMT4J | Advancing Treatments for Rare Diseases
Cure CMT4J raises funds to support the research, development, and production of a therapy or cure for Charcot Marie Tooth Disease 4J.
813019217
EIN
2016
Founded
IPSWICH, MA 01938
Address
curecmt4j.org
Web
CureCMT4J
Facebook (2569)
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News
01 kvě
05 pro
CureCMT4J in the News! One more box checked on our way to a clinical trial! Rare Pediatric Disease and Orphan Drug Designations granted by the FDA! Thank you to the relentless work from the Elpida team, as well as our ever-growing team of investigators, researchers and clinicians who have helped us to get here! Let's go!!!! #curecmt4j #RUDuffEnough #rareiscommon (fb)
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About the organization
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Rare diseases affect one in 10 people. Finding the cure for one can benefit thousands. CMT4J is a rare progressive neurological disease similar to ALS. CureCMT4J is a nonprofit created by parents of Talia a teenage girl with severe earlyonset CMT4J.
Nerve, Muscle, and Bone Diseases
23 Vacancy
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