Founded
2013
Web
thecalliopejoyfoundation.org
Address
BALA CYNWYD
The Calliope Joy Foundation | Fighting Leukodystrophy Mission Contact More Dear Friends and Supporters I am writing to you with a heart full of gratitude and appreciation. When we founded The Calliope Joy Foundation in 2013 our mission was to drive awareness fund research and support families affected by leukodystrophy. Thanks to your unwavering generosity and advocacy we have seen what once seemed impossible become a reality. With this years FDA approval of gene therapy treatment for Cals disease metachromatic leukodystrophy MLD.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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Discussions
Odpovědí v diskuzi
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1. How can The Calliope Joy Foundation leverage the recent FDA approval of gene therapy for MLD to enhance awareness and educational outreach within the leukodystrophy community?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. In what ways can we engage families affected by leukodystrophy during the foundation's pause in operations to ensure they feel supported and informed about new developments in research and treatment?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
What incredible news! 💖 A huge congratulations to The Calliope Joy Foundation for reaching such a monumental milestone. Your hard work and dedication have given hope to so many families. Together, we're making a difference! 🌟
Brooklyn Simmons
Product Manager
Feeling so inspired by the amazing progress in MLD treatment! 🙌 Thank you, Calliope Joy Foundation, for all you do. The fight against leukodystrophies is far from over, but this is such a huge step forward! Let's keep the momentum going! 💪💙
Brooklyn Simmons
Product Manager
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