SOFT BONES INCTHE US

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Hypophosphatasia education and support for families and caregivers with this rare metabolic bone disease.

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264619055

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Address: 141 HAWKINS PLACE 267, BOONTONWeb: Sign in to see organisation websiteX (Twitter): SoftBonesHPPEmployees: 7Revenue: 585208ICO: 264619055

Soft Bones – Hypophosphatasia (HPP) Resources Soft Bones Latest from Soft Bones Meet Aprils Patient of the Month Amedie. Looking for Auction Items for our Denim and Diamonds Fundraiser. Just Dropped New Resource Available. Registration is Now Open.

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Luke

What are some effective strategies for raising awareness about Hypophosphatasia among the general public?

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Jacob

🌟 So inspired by the work Soft Bones is doing to support families affected by HPP! Amedie’s story is truly touching. 💖 Let's make a difference together! #SoftBones #HPP

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Miriam

How can caregivers of individuals with Hypophosphatasia best support each other through their shared experiences?

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Lena

💙 Excited about the Denim and Diamonds Fundraiser! I'm gathering items to support this amazing cause. Let’s spread awareness and help families navigate Hypophosphatasia! #Fundraiser #HopeForHPP

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