ASXL RARE RESEARCH ENDOWMENT FOUNDATION
Supporting research and education to improve the quality of life for those living with ASXL-related disorders #BohringOpitz #ShashiPena and #BainbridgeRopers We support research and education to improve the lives of families living with ASXL syndromes.
Founded
2018
1424
X (Twitter)
151
Address
Portland
ASXL Rare Research Endowment Foundation Supporting research and improving care for ASXL syndromes Were a familyled organization supporting research to increase the understanding of the ASXL gene family and improve care for those living with disorders related to the ASXL genes. Research Questions in ASXLRelated Disorders survey Deadline extended to Monday March 31 2025. The ARRE Foundation invites you to take part in an important research survey that has been guided by a dedicated team of ASXL parents and researchers over the last year. Your insights are invaluable to prioritizing the unanswered questions about ASXLrelated disorders and driving meaningful research forward.
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