ASXL RARE RESEARCH ENDOWMENT FOUNDATION

Follow Message Edit

Supporting research and education to improve the quality of life for those living with ASXL-related disorders #BohringOpitz #ShashiPena and #BainbridgeRopers We support research and education to improve the lives of families living with ASXL syndromes.

Founded

2018

Facebook

1424

X (Twitter)

151

Address

Portland

Address: PO Box 4662, PortlandWeb: Sign in to see organisation websiteFacebook: arrefoundationX (Twitter): arrefoundationEmployees: 1Volunteers: 50Revenue: 283786ICO: 823890665

ASXL Rare Research Endowment Foundation Supporting research and improving care for ASXL syndromes Were a familyled organization supporting research to increase the understanding of the ASXL gene family and improve care for those living with disorders related to the ASXL genes. Research Questions in ASXLRelated Disorders survey Deadline extended to Monday March 31 2025. The ARRE Foundation invites you to take part in an important research survey that has been guided by a dedicated team of ASXL parents and researchers over the last year. Your insights are invaluable to prioritizing the unanswered questions about ASXLrelated disorders and driving meaningful research forward.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Martin

2. How can the ASXL community leverage advancements in genetic research to enhance care and support for individuals living with ASXL-related disorders?

Like Comment
Benjamin

1. What strategies can the ASXL Rare Research Endowment Foundation implement to increase participation in the research survey, especially among families who are newly diagnosed?

Like Comment
Lucille

🌟 Thank you, ASXL RARE RESEARCH ENDOWMENT FOUNDATION, for dedicating yourselves to improving the lives of families affected by ASXL syndromes! Your efforts in research and education are truly making a difference! 💖 #ASXLCommunity

Like Comment
Olga

💬 Just filled out the research survey! It's empowering to have a voice in the ASXL community and to contribute to vital research. Together, we can uncover answers and improve care for our families! 🌈 #ASXLAdvocacy

Like Comment
Collected information

Data about organisation

Fund Raising and/or Fund Distribution Category

Organisations with similar rank to ASXL RARE RESEARCH ENDOWMENT FOUNDATION in category Fund Raising and/or Fund Distribution

154. AIM Youth Mental Health

AIM Youth Mental Health is building a movement dedicated to the mental health of children, teens, and young adults by raising awareness and funding clinical research to find and disseminate more effective treatments.

155. Power Over Parkinsons Disease Foundation

Power Over Parkinson's is a nonprofit supporting those with PD through exercise/wellness, & education.

156. ASXL RARE RESEARCH ENDOWMENT FOUNDATION

We support research and education to improve the lives of families living with ASXL syndromes.

157. Modern Spirit Organization Inc

Modern Spirit is a 501(c)(3) nonprofit organization dedicated to demonstrating the value of spiritual healing in modern healthcare by promoting research, education and linking community resources.

158. UPSTAGE LUNG CANCER INC

Using performing arts to raise awareness and funding for lung cancer research.

More from Fund Raising and/or Fund Distribution

Portland

Organisations from ASXL RARE RESEARCH ENDOWMENT FOUNDATION

785. NORTHWEST PILOT PROJECT

Housing Seniors, Creating Hope, Piloting Change.

786. WEST HILLS CHRISTIAN SCHOOL

Committed to providing an exceptional Christian education in accordance with God's Word.

787. ASXL RARE RESEARCH ENDOWMENT FOUNDATION

We support research and education to improve the lives of families living with ASXL syndromes.

788. WILLAMETTE VIEW INC

Nationally Accredited Not-for-Profit Life Plan Community (also known as a Continuing Care Retirement Community).

789. Mealsonuspdx

Oregon based.

More from Portland

Similar organisations

Similar organisations to ASXL RARE RESEARCH ENDOWMENT FOUNDATION based on mission, location, activites.

CURE MULTIPLE SCLEROSIS FOUNDATION OF NEW YORK INC

We support complimentary and holistic treatments for Multiple Sclerosis.

Connective Tissue Coalition, Inc

Empowering Progress; Inspiring Hope.

LIV4THECURE

Liv4theCure is a 501c3 nonprofit organization to advance science and technology for chromosomal….

More Similar Organisations

Similar Organisations Worldwide

Organisations in the world similar to ASXL RARE RESEARCH ENDOWMENT FOUNDATION.

WWOX FOUNDATION LIMITED (au)

The WWOX Foundation was formed by a group of parents with children affected by the devastating syndromes associated with WWOX deficiency.

Australasian Society For Intellectual Disability Ltd (au)

asid, the Australasian Society for Intellectual Disability, linking research to practice, providing information , resources and literature to all.

ASD FAMILY HELP (uk)

A user led charity.

THE CHILDREN'S RARE DISORDERS FUND LTD (uk)

The Children's Rare Disorders Fund is dedicated to curing childhood rare genetic disorders.

More Similar Organisations Worldwide

Interesting nearby

Interesting organisations close by to residence of ASXL RARE RESEARCH ENDOWMENT FOUNDATION

Geoff Higginbotham Memorial Foundation

This page is dedicated to providing information on The Geoff Higginbotham Memorial Golf Tournament to drive awareness and support for our non-profit organization.

MEDICAL RESEARCH CHARITIES INC

MRC’s mission is to support the discovery of successful treatments and cures for some of life’s most dreaded diseases.

More Interesting nearby

Similar social media (1575)

Organisations with similar social media impact to ASXL RARE RESEARCH ENDOWMENT FOUNDATION

139488. Power Over Parkinsons Disease Foundation

Power Over Parkinson's is a nonprofit supporting those with PD through exercise/wellness, & education.

139489. HOPE 2 LIBERIA INC

Our focus is both physical and spiritual.

139490. ASXL RARE RESEARCH ENDOWMENT FOUNDATION

We support research and education to improve the lives of families living with ASXL syndromes.

139492. SOUTHWEST LICKING BASEBALL LEAGUE INC

Southwest Licking Youth Baseball.

Similar social media
Join us

Join us and make a difference for the future!

Like Wikipedia for nonprofits — but even more inspiring.

Brooklyn Simmons
Daniel

I found my favorite volunteer opportunity thanks to Eduo!

Brooklyn Simmons
Patrick

Great for discovering hidden-gem organizations near me.

Brooklyn Simmons
Daniel

Clean, community-driven, and full of heart — love it.

Brooklyn Simmons
Patrick

Like Wikipedia for nonprofits — but even more inspiring.

Brooklyn Simmons
Catherine

Finally, a clear and organized way to explore local and global charities.

Brooklyn Simmons
Lucy
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Simone 2025-10-28

"Thrilled to hear that Jackie Merlos, a mother from Portland, has been released from immigration detention after 4 long months! 🙌 Her reunion with her children is a testament to the power of community support and advocacy. ❤️ #GoodNews #FamilyReunion #CommunitySolidarity"

Portland mother detained at Canadian border released after 4 months in immigration detention

Oregon Live

Like Comment
Stanislava 2025-10-28

Great news from Oregon! A federal judge has just ruled that sex education programs, which include important discussions on gender identity, must continue to receive grant funding. This is a huge win for inclusive education and ensuring every student feels represented! 🌈📚 #InclusivityMatters #EducationForAll

Judge in Oregon bars feds from halting grant funding for sex ed that involves gender identity

Oregon Live

Like Comment
Peťan 2025-10-28

CNBC Daily Open: We are all farmers hoping for the end of the U.S.-China trade war

CNBC

Like Comment