The Pierce Family Fragile X Foundation

Overview

The Pierce Family Fragile X Foundation is a U.S. nonprofit organization dedicated to supporting research, treatment development, and community awareness about Fragile X Syndrome. Founded by Michael and Kathan Pierce, the foundation is motivated by their personal experience with Fragile X, as it affects their sons, Graham and Reid.

Mission

The foundation's mission is to fund dedicated research and treatment development for Fragile X Syndrome. This includes supporting efforts to find effective treatments and ultimately a cure for the condition. Their guiding theme is "it takes a village to find a cure," which underscores the importance of community involvement and support.

Activities

The foundation hosts various events to raise funds for research. One notable event is the Hope for the Holidays Gala, which has successfully contributed significant funds to further Fragile X research. Over three years, the foundation donated $300,000 to support research projects at institutions such as Massachusetts General Hospital, Boston Children’s Hospital, and Tufts University. Additionally, they collaborate closely with organizations like FRAXA Research Foundation to advance research goals, including funding joint grants for exploring biomarkers that could optimize treatment for individuals with Fragile X.

Partnerships

The Pierce Family Fragile X Foundation has a strong partnership with FRAXA Research Foundation. This collaboration allows them to jointly support research grants and contribute to the broader mission of finding effective treatments for Fragile X syndrome. Their efforts also highlight the potential benefits of Fragile X research for other brain disorders, such as autism and Alzheimer's disease.

Impact

Through its community-based approach and strategic fundraising efforts, the Pierce Family Fragile X Foundation has made significant contributions to advancing Fragile X research. Their dedication to seeking a cure while supporting affected families reflects the foundation's commitment to making a positive impact on the lives of those living with Fragile X syndrome.