EBF3 HADDS Foundation

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EBF3 HADDS FOUNDATION

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832757964

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Address: P O Box 31602, HoustonWeb: Sign in to see organisation websiteFacebook: EBF3HADDSFoundationRevenue: 61351ICO: 832757964

Non-Profit Foundation | EBF3 HADDS Foundation Home SupportDonate About Events Blog Shop More ARTICLES EVENTS BLOG CONNECT Learn more about what is happening globally with our community. Stay up to date with the latest gatherings events happenings. Read blog entries from various members of our community about their life experiences more. Learn how to connect and support other community members on social and person.

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Laura

So inspired by the incredible work the EBF3 HADDS Foundation is doing to raise awareness and support for families affected by EBF3 HADD Syndrome! Keep shining a light on this important cause! 💙✨

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Dana

Just donated to the EBF3 HADDS Foundation! Every little bit helps in promoting awareness and supporting those living with EBF3 HADD Syndrome. Let's make a difference together! 🌍❤️

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Lena

1. What innovative fundraising strategies have you found to be effective in raising awareness and support for rare genetic syndromes like EBF3 HADD Syndrome?

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Thomas

2. How can we better leverage social media platforms to connect individuals and families impacted by EBF3 HADD Syndrome and share their stories?

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EBF3 HADDS Foundation

🚨✨ NEW. Be Part of the HADDS Squad. ✨🚨 We’re launching the HADDS Squad—a brand-new volunteer program for individuals with HADDS and 10q26 deletion, along with their parents and caregivers.

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EBF3 HADDS Foundation

💬 You’ve been asking, now mark your calendars and SAVE THE DATE. 🌟 We’re thrilled to announce we have confirmed the dates for the 2026 EBF3 HADDS International Conference, July 22–24, 2026 in Houston, Texas. The EBF3 HADDS International conference includes: 🎤 Expert presentations from leading clinicians & HADDS researchers 🤝 Networking with HADDS and 10q26 deletion families from around the globe 💙 Inspiring community moments you’ll never forget More details including registration and accommodation information, travel grant applications and more will be shared in early 2026.

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