STXBP1 FOUNDATION

Birth Defects, Genetic Diseases / HOLLY SPRINGS /

STXBP1 Foundation

Non-profit dedicated to ending STXBP1-related disorders, rare neurodevelopmental and epileptic encephalopathies, and spreading awareness of this rare disease.
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821439459
EIN
2017
Founded
HOLLY SPRINGS, NC 27540
Address
stxbp1disorders.org
Web
curestxbp1
Twitter (913)

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About the organization

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Science Love CURE Our Mission Welcome to the STXBP1 Foundation a 501c3 dedicated to raising awareness and finding a cure for STXBP1Related Disorder a rare neurodevelopmental condition and genetic epilepsy. We work with families physicians scientists and pharmaceutical innovators. The STXBP1 Foundation was created by a group of dedicated parents. Our nonprofit is focused on advocacy driving research and providing our families and their physicians with information and resources.

Birth Defects, Genetic Diseases
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