STXBP1 FOUNDATION
Non-profit dedicated to ending STXBP1-related disorders, rare neurodevelopmental and epileptic encephalopathies, and spreading awareness of this rare disease. It is our mission to raise awareness of STXBP1 and generate funds to drive and accelerate research.
Founded
2017
3008
X (Twitter)
913
Address
HOLLY SPRINGS
STXBP1 Foundation Science Love CURE Our Mission Welcome to the STXBP1 Foundation a 501c3 dedicated to raising awareness and finding a cure for STXBP1Related Disorder a rare neurodevelopmental condition and genetic epilepsy. We work with families physicians scientists and pharmaceutical innovators. The STXBP1 Foundation was created by a group of dedicated parents. Our nonprofit is focused on advocacy driving research and providing our families and their physicians with information and resources.
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Birth Defects, Genetic Diseases Category
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