DON'T FORGET ME

Follow Message Edit

โ€ขDedicated to Finding a Cure or Medical Treatment for the rare disease BPAN. We are raising funding for a new gene therapy project at CHOP Visit our site below Don't Forget Morgan was started to find a cure for a rare disease called BPAN. Our daughter Morgan

Founded

2019

Facebook

814

X (Twitter)

83

Address

WEST BLOOMFIELD

Address: 2200 UPLONG DRIVE, WEST BLOOMFIELDWeb: Sign in to see organisation websiteFacebook: dontforgetmorganX (Twitter): Dont4getMorganRevenue: 372294ICO: 843358278

Home | Dontforgetmorgan Who We Are What is BPAN. Isabella39s Story Elle39s Story Shop Press BeatBPAN. org A Mission To Save All Kids With BPAN Donx27t Forget Morgan MORGAN39S STORY Meet Morgan she is the happiest most lovable girl who has an ultrarare progressivedisease called BPAN that will eventually take her sweet life away too early. There are only 500 known cases in the entire world and there is very little research being done.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Anna

We can all make a difference in the fight against BPAN! Let's support Morgan and her family by spreading awareness and contributing to this vital cause! ๐Ÿ’–๐Ÿ’ช #DontForgetMorgan

Like Comment
Patrick

Morgan's story is a powerful reminder of the importance of research and funding for rare diseases. Let's come together to help find a cure so she and other children can have a brighter future! ๐ŸŒŸ๐Ÿ™ #BeatBPAN

Like Comment
Eve

2. How can we better raise awareness about BPAN and connect with families affected by this rare disease to foster a supportive community?

Like Comment
Manuel

1. What innovative fundraising strategies have other NGOs successfully used to support rare disease research, and how can we apply those to our efforts for BPAN?

Like Comment
Collected information

Data about organisation

Specifically Named Diseases Category

Organisations with similar rank to DON'T FORGET ME in category Specifically Named Diseases

258. GAIA Vaccine Foundation

GAIA VF promotes the prevention of infectious diseases (HIV, TB, and HPV), while working on the development of globally relevant, globally accessible vaccines that can be distributed on a not-for-profit basis in the developing world.

259. DON'T FORGET ME

Don't Forget Morgan was started to find a cure for a rare disease called BPAN.

260. Social and Health Research Center, INC

The Social and Health Research Center (SAHRC) is a non-profit center committed to the social and health well-being of the populations at risk.

261. Parkinson Association of Northern California

The Parkinson Association is an organization dedicated to improving the quality of life for people with Parkinsonโ€™s, their families and caregivers.

More from Specifically Named Diseases

WEST BLOOMFIELD

Organisations from DON'T FORGET ME

More from WEST BLOOMFIELD

Similar organisations

Similar organisations to DON'T FORGET ME based on mission, location, activites.

Platelet Disorder Support Association, Inc.

PDSA is dedicated to enhancing the lives of people with ITP and other platelet disorders through education, advocacy, research, and support.

Cure SMA

Cure SMA is dedicated to the treatment and cure of spinal muscular atrophy (SMA).

MAGIC Foundation

MAGIC/charity for families BY families.

T-1 TODAY INC

Children with Diabetes focuses on care today, so we are ready for a cure tomorrow.

MOWAT-WILSON SYNDROME FOUNDATION

This is the official page for the Mowat-Wilson Syndrome Foundation.

More Similar Organisations

Similar Organisations Worldwide

Organisations in the world similar to DON'T FORGET ME.

ACTION FOR BPAN (uk)

We are the 1st UK charity focused on funding a cure for BPAN, supporting affected families & creating as much awareness as we can about this devestating disease.

THE CHILDREN'S RARE DISORDERS FUND LTD (uk)

The Children's Rare Disorders Fund is dedicated to curing childhood rare genetic disorders.

More Similar Organisations Worldwide

Interesting nearby

Interesting organisations close by to residence of DON'T FORGET ME

MI Lupus Foundation

Improving the quality of life for those living with lupus through support, education and research.

Pink Fund

Pink Fund provides short-term non-medical financial assistance to breast cancer patients.

Lupus Detroit

Lupus Detroit is a voluntary health organization dedicated to eliminating lupus as a major health problem through education, advocacy and service.

Defeat Msa Awareness Shoe

Defeat MSA Alliance aims to increase MSA AWARENESS, ALLEVIATE MSA and ADVANCE MSA research.

Mitoaction Inc.

Improving the quality of life for the mitochondrial disease patient community through support, education and advocacy.

More Interesting nearby

Similar social media (897)

Organisations with similar social media impact to DON'T FORGET ME

172668. Dos Pueblos Football Boosters Club

Follow for the latest DPHS Athletics updates.

172670. DON'T FORGET ME

Don't Forget Morgan was started to find a cure for a rare disease called BPAN.

172671. Alvord-Taylor Inc

Alvord-Taylor Independent Living Services assists people with disabilities to live quality lives in .

172672. ANCHOR LANCASTER

Anchor Lancaster serves breakfast to our neighbors every Monday through Friday, 52 weeks a year.

Similar social media
Join us

Join us and make a difference for the future!

What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda โ€” just provides tools for people to explore and support what matters to them.

Brooklyn Simmons
Janet

What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda โ€” just provides tools for people to explore and support what matters to them.

Brooklyn Simmons
Barbara

Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.

Brooklyn Simmons
Stacy

Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!

Brooklyn Simmons
Yvette

Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.

Brooklyn Simmons
Paul

I found my favorite volunteer opportunity thanks to Eduo!

Brooklyn Simmons
Janet
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Lucie 2025-10-24

"Exciting news! ๐ŸŽ‰ Statues of Rosa Parks and Helen Keller, two icons of justice and inspiration, will be unveiled at the Alabama Capitol! A powerful reminder of the change we can all create together. ๐ŸŒโœจ #Inspiration #Justice #GoodNews"

Rosa Parks and Helen Keller statues will be unveiled at the Alabama Capitol

KPRC

Like Comment
Anita 2025-10-24

Bolay Fresh Bold Kitchen in South Florida offers fresh fuel for a good cause in October

CBS News

Like Comment
Lenka 2025-10-24

๐ŸŒŸ Exciting news from Gardena, California! 135th Elementary School is making strides in improving educational outcomes! Principal Sherree Lewis-DeVaughn is leading the charge with a fresh vision and dedication. Let's celebrate such inspiring changes in schools everywhere! #PositiveNews #EducationMatters ๐ŸŽ‰๐Ÿ“š

Historic Los Angeles Testing Gains Lift Even the Lowest-Performing Schools

Yahoo

Like Comment