SITOSTEROLEMIA FOUNDATION

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474299452

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Address: 814 Tannahill Drive, HuntsvilleWeb: Sign in to see organisation websiteICO: 474299452

Sitosterolemia Foundation Sitosterolemia Foundation Home About us About Sitosterolemia Resources Events FAQ Contact Us More Supporting families and individuals with Sitosterolemia Sitosterolema Foundation is a nonprofit organization dedicated to supporting families individuals and professionals dealing with Sitosterolemia a rare sterol disease. By providing a network of ongoing communication funding related research and raising awareness we are committed to enhancing the quality of life of affected individuals while improving on current treatment methods. UsefulLinks Sterol and Isoprenoid Research Constortium Eunice Kennedy Striver National Institute of Child Health and Human Development Genetic and Rare Disease Information Centre GARD Email sitosterolemiafoundationgmail. com .

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Paul

So grateful for the work the Sitosterolemia Foundation is doing to support families and raise awareness! Together, we can make a difference in the lives of those affected. 💚 #SitosterolemiaAwareness

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Molly

Kudos to everyone involved with the Sitosterolemia Foundation! Your dedication to improving treatments and providing resources for affected individuals is truly inspiring. Keep up the amazing work! 🙌🌟 #SupportAndAwareness

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Louise

2. How can the Sitosterolemia Foundation better support families navigating the emotional and financial challenges associated with this rare disease?

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Monica

1. What are some effective strategies for raising awareness about Sitosterolemia among medical professionals and the general public?

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Huntsville

Organisations from SITOSTEROLEMIA FOUNDATION

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4. ONE DIRECTION COMMUNITY UNITED METHODIST CHURCH

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5. HUNTSVILLE FIRST UNITED METHODIST CHURCH

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