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Sitosterolemia Foundation Home About us About Sitosterolemia Resources Events FAQ Contact Us More Supporting families and individuals with Sitosterolemia Sitosterolema Foundation is a nonprofit organization dedicated to supporting families individuals and professionals dealing with Sitosterolemia a rare sterol disease. By providing a network of ongoing communication funding related research and raising awareness we are committed to enhancing the quality of life of affected individuals while improving on current treatment methods. UsefulLinks Sterol and Isoprenoid Research Constortium Eunice Kennedy Striver National Institute of Child Health and Human Development Genetic and Rare Disease Information Centre GARD Email sitosterolemiafoundationgmail. com .