ICO

474299452

Facebook

Web

sitosterolemiafoundation.org

Address

Huntsville

Address: 814 Tannahill Drive, HuntsvilleWeb: sitosterolemiafoundation.orgICO: 474299452

Sitosterolemia Foundation Sitosterolemia Foundation Home About us About Sitosterolemia Resources Events FAQ Contact Us More Supporting families and individuals with Sitosterolemia Sitosterolema Foundation is a nonprofit organization dedicated to supporting families individuals and professionals dealing with Sitosterolemia a rare sterol disease. By providing a network of ongoing communication funding related research and raising awareness we are committed to enhancing the quality of life of affected individuals while improving on current treatment methods. UsefulLinks Sterol and Isoprenoid Research Constortium Eunice Kennedy Striver National Institute of Child Health and Human Development Genetic and Rare Disease Information Centre GARD Email sitosterolemiafoundationgmail. com .

Real voices

Data & Similar organisations

Together, we can make a real impact in communities around the world. Help us bring hope and support.

Similar organisations

Phelan McDermid Syndrome Foundation

Our official Foundation Facebook page aims to raise awareness of Phelan-McDermid syndrome.

PTEN Hamartoma Tumor Syndrome Foundation

We are working to accelerate PTEN research while educating the world about PTEN syndromes and supporting our patient community.

Center for Ehlers Danlos Syndrome Alliance Inc

CEDSA is all about the patient, their caregivers, physicians and their staff, plus schools and teache.

Curedrpla Inc

Connecting patients, families and researchers to further DRPLA research and work towards a treatment.

More Similar Organisations

Similar Organisations Worldwide

Action FCS (uk)

Patient-led organisation for people with Familial Chylomicronaemia Syndrome, we were previously called LPLD Alliance.

LIPOEDEMA UK (uk)

Lipoedema UK is a charity founded in 2012 by a group of individuals affected by Lipoedema and healthcare professionals from St George’s Hospital, London.

LIPOEDEMA UK (uk)

Lipoedema UK is a charity founded in 2012 by a group of individuals affected by Lipoedema and healthcare professionals from St George’s Hospital, London.

More Similar Organisations Worldwide

More from Huntsville

Waygate Foundation Inc

Supporting and engaging science fiction and fantasy authors and fans in global philanthropic endeavors.

Huntsville-Madison County Mental Health Board Inc

WellStone is North Alabama’s mental health leader, connecting our community to health and well-being.

TRINITY HUNTSVILLE UNITED METHODIST CHURCH

The United Methodist Church is a worldwide connection of close to 10 million members in over 100 countries including Africa, Asia, Europe and the United States.

More from Huntsville
Our Impacts

Discussions

Odpovědí v diskuzi

1

1. What are some effective strategies for raising awareness about Sitosterolemia among medical professionals and the general public?

View
Brooklyn Simmons
Brooklyn Simmons

2 days ago

Odpovědí v diskuzi

1

2. How can the Sitosterolemia Foundation better support families navigating the emotional and financial challenges associated with this rare disease?

View
Brooklyn Simmons
Brooklyn Simmons

2 days ago

}
Voices of Others

Latest reviews

Together, we can make a real impact in communities around the world. Help us bring hope and support.

So grateful for the work the Sitosterolemia Foundation is doing to support families and raise awareness! Together, we can make a difference in the lives of those affected. 💚 #SitosterolemiaAwareness

Brooklyn Simmons
Brooklyn Simmons

Product Manager

logo of the company

Kudos to everyone involved with the Sitosterolemia Foundation! Your dedication to improving treatments and providing resources for affected individuals is truly inspiring. Keep up the amazing work! 🙌🌟 #SupportAndAwareness

Brooklyn Simmons
Brooklyn Simmons

Product Manager

logo of the company

Share your comment / review / opinion

Kendall Monroe
Kendall Monroe

Product Manager

logo of the company
Join us

Join us and make a difference for the future!

A brilliant resource for anyone who wants to do good more effectively.

Brooklyn Simmons
Brooklyn Simmons

Product Manager

Finally, a platform that brings transparency and accessibility to the nonprofit world. Eduo makes it simple to see who’s doing meaningful work and how to get involved.

Kendall Monroe
Kendall Monroe

Product Manager

Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.

Madison Carter
Madison Carter

Product Manager

Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!

Riley Bennett
Riley Bennett

Product Manager

What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda — just provides tools for people to explore and support what matters to them.

Sydney Parker
Sydney Parker

Product Manager

Great for discovering hidden-gem organizations near me.

Jordan Blake
Jordan Blake

Product Manager

Eduo.org makes finding trustworthy nonprofits refreshingly simple.

Brooklyn Simmons
Brooklyn Simmons

Product Manager

Finally, a platform that brings transparency and accessibility to the nonprofit world. Eduo makes it simple to see who’s doing meaningful work and how to get involved.

Kendall Monroe
Kendall Monroe

Product Manager

Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or