Collagen 6 Research Charity Inc

Follow Message Edit

Raising money to cure Collagen VI-related dystrophy, a rare congenital muscular dystrophy. OUR MISSION IS TO SUPPORT COLLAGEN 6 MUTATION ACADEMIC RESEARCH.

ICO

844216554

Facebook

224

Web

Sign in to see organisation website

Address

Westport

Address: 233 Old Harbor Rd, WestportWeb: Sign in to see organisation websiteFacebook: col6fundRevenue: 102696ICO: 844216554

Research Fund | COL6 Fund | Sharon FUND COL6 About Mission Research Strategy Wesleyx27s Warriors Col6 Running Donations Targeting Therapies Our Family Reach Out Resources More Welcome to the COL6 Fund COL6 Fund is a registered 501 c 3 nonprofit raising money to cure Collagen VIrelated dystrophy a rare congenital muscular dystrophy. COL6 FUND Collagen VIrelated dysthrophy is a rare and understudied musclewasting disorder. Wesley39s Story What We Do COL6 Fund was founded in 2020 because there are only a handful of researchers thousands of children and still no treatments. The technology and science are here but the funds to direct research are not.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Jack

1. How can we increase awareness and funding for research on rare diseases like Collagen VI-related dystrophy, which often struggle to gain attention compared to more common conditions?

Like Comment
Lucy

2. What are some innovative fundraising ideas that could help the COL6 Fund engage communities and support research efforts for Collagen VI-related dystrophy?

Like Comment
Emil

Incredible work being done by the COL6 Fund! Together, we can make a difference for those affected by Collagen VI-related dystrophy. πŸ’– #CureColl6

Like Comment
Sarah

Just donated to COL6 Fund! Every little bit helps us get closer to finding a cure for this rare condition. Let’s support Wesley and all the warriors fighting this battle! πŸ™Œ #FundCol6

Like Comment
Collected information

Data about organisation

Fund Raising and/or Fund Distribution Category

Organisations with similar rank to Collagen 6 Research Charity Inc in category Fund Raising and/or Fund Distribution

274. RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION

Accelerating science to find rare disease cures.

275. Collagen 6 Research Charity Inc

Raising money to cure Collagen VI-related dystrophy, a rare congenital muscular dystrophy.

276. Full Life Foundation for Lynch Syndrome Inc

The Full Life Foundation for Lynch Syndrome was founded as a 501(c)(3) non-profit, charitable organization in 2019 to educate and spread awareness to the community and raise funds for research pertaining to Lynch Syndrome and its related cancers.

More from Fund Raising and/or Fund Distribution

Westport

Organisations from Collagen 6 Research Charity Inc

64. THE SCHNEERSON CENTER FOR JEWISH LIFE CT INC

Chabad Schneerson Center for Jewish life, CT is a Jewish outreach organization dedicated to you.

65. Nest Egg Foundation Inc

Nest Egg Foundation is a tax exempt 501(c)(3) not for profit founded to provide financial grants for.

66. Collagen 6 Research Charity Inc

Raising money to cure Collagen VI-related dystrophy, a rare congenital muscular dystrophy.

67. Saugatuck Nursery School

Preschool for ages 2-5 .

More from Westport

Similar organisations

Similar organisations to Collagen 6 Research Charity Inc based on mission, location, activites.

Lupus Research Institute Inc

The Lupus Research Alliance is the world’s largest private funder of lupus research.

JDJ CHARITABLE FOUNDATION

We’re a NYC-based volunteer network for young urban professionals passionate about giving back.

CURE MULTIPLE SCLEROSIS FOUNDATION OF NEW YORK INC

We support complimentary and holistic treatments for Multiple Sclerosis.

More Similar Organisations

Similar Organisations Worldwide

Organisations in the world similar to Collagen 6 Research Charity Inc.

CURE INAD UK (uk)

Infantile Neuro Axonal Dystrophy is a rare inherited disorder.

THE DUCHENNE RESEARCH FUND (uk)

The Duchenne Research Fund has raised more than Β£6m to fund research and treatments for DMD.

The Gillin Boys Foundation Muscular Dystrophy Awareness Warrnambool Inc (au)

The Gillin Boys Foundation Muscular Dystrophy Awareness Warrnambool is FIGHTING to cure Duchenne.

Save Our Sons Ltd (au)

Save Our Sons was founded in 2008 and is now the peak body for those living with Duchenne and Becker .

Bone Growth Foundation Inc (au)

The Bone Health Foundation raises money to fund research into treatments and cures for bones and musc.

More Similar Organisations Worldwide

Interesting nearby

Interesting organisations close by to residence of Collagen 6 Research Charity Inc

FOR KIDS SAKE FOUNDATION INCORPORATED

For Kids’ Sake has a mission to raise awareness for and improve the lives of children with cancer.

HOPE IN FOCUS INC

Transforming the lives of those affected by blindness from inherited retinal disease.

Partners for Krabbe Research

P4KR is a 501(c)3 non profit organization designed to increase awareness and to support research to improve the lives of those born with Krabbe Disease.

LINDA SOUSA A BETTER DREAM FOUNDATION INC

The Foundation was created to award scholarships to area high school seniors to further their educat.

More Interesting nearby

Similar social media (224)

Organisations with similar social media impact to Collagen 6 Research Charity Inc

222795. Techive Inc NFP

TecHive Inc NFP is a non-profit focused on empowering mid-career women to discover and own their data and technology narrative to build confidence and leadership in every aspect of technology.

222796. Laredo Motor Carrier Association

The Unified Voice of Laredo.

222797. Collagen 6 Research Charity Inc

Raising money to cure Collagen VI-related dystrophy, a rare congenital muscular dystrophy.

222798. SEQUEL INC

Empowering Elders in their next chapter of life through supportive services.

222799. TEXAS BLEEDING DISORDERS CAMP FOUNDATION INC

Summer camp program for boys age 7-17 in Texas living with a bleeding disorder.

Similar social media
Join us

Join us and make a difference for the future!

As a teacher, I use Eduo in class to show students how civic engagement works. It’s inspiring and educational. Highly recommend for schools and community groups.

Brooklyn Simmons
Paul

Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.

Brooklyn Simmons
Yvette

Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.

Brooklyn Simmons
Joanna

What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda β€” just provides tools for people to explore and support what matters to them.

Brooklyn Simmons
Paul

What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda β€” just provides tools for people to explore and support what matters to them.

Brooklyn Simmons
Stacy

Eduo connects you to causes that actually matter to you.

Brooklyn Simmons
Joanna
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Michael 2025-10-23

"Thrilled to see more investment opportunities that empower positive change! 🌱 Cory Donovan's ImpactPHL is leading the way for investors to support worthy causes. #InvestingForGood #PositiveImpact"

Investing for Good

The Hub

Like Comment
Katka 2025-10-23

"Thrilled to see Chappell Roan launch the Midwest Princess Fund for Trans Youth, already raising $400K! πŸ’–βœ¨ It's inspiring to witness artists using their platforms for such a meaningful cause. Let's support our communities and uplift every voice! 🌈 #LGBTQ #TransYouth #GoodNews"

Chappell Roan Unveils Midwest Princess Fund for Trans Youth -- and She's Already Raised $400K

Billboard

Like Comment
David 2025-10-23

Thrilled to hear that Doja Cat and Gracie Abrams will bring their talent to Vogue World: Hollywood, celebrating diversity and creativity in the entertainment industry! πŸŽ‰βœ¨ #PositiveVibes #CulturalCelebration

Doja Cat and Gracie Abrams Set to Perform at Vogue World: Hollywood in Front of A-Listers

The Hollywood Reporter

Like Comment