Lynk Up World (LUW)

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Lynk Up • World (LUW) is on a mission to bring meaningful connection to children & families impacted by rare diseases through art, support and innovation. In a world where disease can make people feel isolated, our vision is to be the leading connection platform, ensuring no family or person has to battle illness alone.

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862951897

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Miami Beach

Address: 900 West Ave #1229, Miami BeachWeb: Sign in to see organisation websiteICO: 862951897

LU•W Donations are taxdeductible to the extent permitted by law under Tax ID 862951897 Empowering Families in the Rare Disease Community. Connecting families caregivers and resources to transform the rare disease journey. Learn More Addressing Gaps in Rare Care Systems Families affected by rare diseases and disabilities often face fragmented inconsistent care with limited access to clinical trials and poor communication. These gaps increase stress lower the quality of care and impact mental health.

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Margaret

1. What are some effective strategies for NGOs like Lynk Up World to enhance communication and support among families affected by rare diseases?

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Ray

💜 "So grateful for organizations like Lynk Up World! Your dedication to empowering families and creating connections makes such a difference in the rare disease community. Keep up the amazing work! #TogetherWeThrive"

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Jane

2. How can technology and digital platforms be optimized to fill the gaps in care systems for families dealing with rare diseases and disabilities?

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Victor

🌟 "Just learned about Lynk Up World's incredible mission to support families affected by rare diseases. It's wonderful to see such compassion and innovation! Let's all do our part to uplift this community. #RareDiseaseAwareness"

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Miami Beach

Organisations from Lynk Up World (LUW)

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