HLH Heroes Foundation Not for Profit
"NO ONE FIGHTS ALONE" The mission of HLH Heroes Foundation is to provide support to individuals and families impacted by HLH. We were created by family members and care givers of HLH warriors and angels to create a community of support. HLH Heroes Foundation provides support to individuals and families impacted by HLH so that no one fights alone.
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Saint Louis
Home | HLH Heroes Foundatio No one fights alone. Help us support those fighting HLH a rare lifethreatening autoimmune disease. Our Story Mission and Vision Programs Events and Assistance Volunteer Participate or Donate Who We Are The HLH Heroes Foundation is a 501c3 nonprofit organization formed in 2021 by a group of HLH caregivers who wanted to honor their warriors by building a community of support. What We Do Being diagnosed with a rare disease is hard.
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HLH Heroes Foundation Not for Profit
**Warrior Wednesday** Warrior’s Name: Adriana Diagnosis: Secondary HLH Location of Treatment: Cleveland Clinic Children's Hospital Story told by family: “Adriana had a cough on our visit to Puerto Rico for Christmas 2024 we took her to a med center they said she had congestion a couple day later she complained of back pain and abdominal pain we took her to the ED they said she had pneumonia and her liver was inflamed because she was fat. Flew back home and took her to the Cleveland clinic they said she had myocarditis and started treating for it. Adriana's condition declined and a month intro her illness they determined she had HLH.
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Patient Services�Entertainment, Recreation Category
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