Adcy5.org

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Supports #raredisease ADCY5 gene variant population - patients, doctors, researchers. #ADCY5 #AC5 #adenylylcylcase Patients with a variant of their ADCY5 gene will now find each other here. Our mission is to support patients and their families affected by ADCY5 gene mutations. We work to advance research and treatment by supporting any researcher or clinician in the world that works in fields encompassing ADCY5 gene mutations. We also work to create an environment of collaboration and data sharing related to ADCY5 efforts.

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LA JOLLA

Address: 8914 NOTTINGHAM PL, LA JOLLAWeb: Sign in to see organisation websiteFacebook: adcy5orgX (Twitter): adcy5Revenue: 1831ICO: 811592495

ADCY5-related movement disorder ADCY5. org is dedicated to those living with Adenylyl cyclase 5 ADCY5related movement disorder ADCY5RMD by supporting affected families clinicians providing care and researchers studying ADCY5. Support Our Work Support our work through a donation or sharing your experience with Adenylyl cyclase 5 ADCY5related movement disorder ADCY5RMD. Genetic Testing Genetic testing is available.

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Tom

1. How can we improve awareness and understanding of ADCY5-related movement disorders among healthcare providers to ensure timely diagnosis and support for affected individuals and families?

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Joseph

2. What are some effective strategies for fostering collaboration between researchers and families affected by ADCY5 gene variants to enhance research outcomes and treatment options?

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Dana

So grateful for this community! It's inspiring to see patients, families, and researchers come together to support each other and advance our understanding of ADCY5. Together, we can make a difference! đź’š #ADCY5 #Community

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Joanna

I'm thrilled that there’s a place for those affected by ADCY5-related movement disorder to connect and share their experiences. Let’s keep spreading awareness and supporting research for better treatments! 🌟 #RareDisease #SupportResearch

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