Lambert-Eaton Lems Family Association
We advocate for patients, family and caregivers who have the extremely rare neuromuscular disorder, Lambert-Eaton Myasthenic Syndrome. We are developing and administering a LEMS Patient Registry of medical data to encourage research for better treatments and outcomes for LEMS patients. We are working to educate and inform the medial community, other interested parties, and our own group to better understand Lambert-Eaton, its challenges, and impact on quality of life for patients and family. We are advocating for LEMS patients in state and federal legislation.
ICO
882952651
Web
lemsfamily.org
Address
Fort Worth
The Lambert-Eaton LEMS Family Association – Awareness from the Heart Join our LEMS Awareness Day Meeting Please welcome our newest board member Tracy Sharp of Kentucky. The LEMS Patient Registry is OPEN. Contact Us The LambertEaton LEMS Family Association2420 Innovation Dr. 612881Dallas TX 75261 Connect with us .
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Discussions
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What strategies can we implement to increase awareness and understanding of LEMS in the general public and medical community?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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How can we better support LEMS patients and their families through our programs and resources?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So grateful for organizations like the Lambert-Eaton LEMS Family Association! Your hard work in raising awareness and supporting families truly makes a difference. 💙 #LEMSAwareness
Brooklyn Simmons
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Welcome, Tracy Sharp! Excited to see the positive impact you’ll have as a new board member. Together, we can make strides in research and advocacy for LEMS patients! 🌟 #LEMSFamily
Brooklyn Simmons
Product Manager
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