Lambert-Eaton Lems Family Association

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We advocate for patients, family and caregivers who have the extremely rare neuromuscular disorder, Lambert-Eaton Myasthenic Syndrome. We are developing and administering a LEMS Patient Registry of medical data to encourage research for better treatments and outcomes for LEMS patients. We are working to educate and inform the medial community, other interested parties, and our own group to better understand Lambert-Eaton, its challenges, and impact on quality of life for patients and family. We are advocating for LEMS patients in state and federal legislation.

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882952651

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Fort Worth

Address: 3921 Kirby Dr Apt 722, Fort WorthWeb: Sign in to see organisation websiteICO: 882952651

The Lambert-Eaton LEMS Family Association – Awareness from the Heart Join our LEMS Awareness Day Meeting Please welcome our newest board member Tracy Sharp of Kentucky. The LEMS Patient Registry is OPEN. Contact Us The LambertEaton LEMS Family Association2420 Innovation Dr. 612881Dallas TX 75261 Connect with us .

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Sophia

Welcome, Tracy Sharp! Excited to see the positive impact you’ll have as a new board member. Together, we can make strides in research and advocacy for LEMS patients! 🌟 #LEMSFamily

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Veronica

How can we better support LEMS patients and their families through our programs and resources?

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Maggie

So grateful for organizations like the Lambert-Eaton LEMS Family Association! Your hard work in raising awareness and supporting families truly makes a difference. 💙 #LEMSAwareness

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Dana

What strategies can we implement to increase awareness and understanding of LEMS in the general public and medical community?

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