International Association for Muscle Glycogen Storage Disease
IamGSD aims to enhance the quality of life of people affected by muscle glycogen storage disease through advocacy, support, and research.
ICO
814795354
X (Twitter)
21
Address
Torrance
IAMGSD | International support group | Muscle glycogen Languages Summit of Pen y Fan McArdlers Caoimhe Eoghan Bronte Sarahand Elisa. Under 21s walking courseWales 2024 IMPROVING LIVES Not English speaking. Our website is prepared in English but the Languages button explains how to you can configure Google Chrome browser to automatically translate our site into your choice of about 160 languages. We have instructions in Chinese Deutsch English Espaol Franais Hindi Italiano Portugus.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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From Social media
News about International Association for Muscle Glycogen Storage Disease from their social media (Facebook and X).
Centre of Expertise: Comprehensive Care for Patients with McArdle Disease: https://t. (tw) ... more
Liked (1) Commented (0)Discussions
Odpovědí v diskuzi
1
What strategies can IamGSD implement to improve awareness and understanding of muscle glycogen storage diseases among healthcare professionals globally?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can IamGSD enhance the accessibility of its resources and support for non-English speaking individuals affected by muscle glycogen storage diseases?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So inspired by the work IAMGSD is doing! The advocacy for early diagnosis and support for families is truly life-changing. Let's spread the word and make a difference together! 💪❤️
Brooklyn Simmons
Product Manager
Excited to see the upcoming walking courses! This is such a great opportunity for everyone affected by muscle glycogen storage disease to connect and improve their health. Keep up the amazing work! 🌍👟
Brooklyn Simmons
Product Manager
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