SMA-PME Research
Your gift will support ongoing medical research leading to development of an effective treatment to counter the ASAH1 mutations which cause SMA-PME and Farber disease, two extremely rare genetic neurodegenerative diseases that lead to premature death in childhood.
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Myrtle Beach
SMA-PME Research SMAPME Research Hope for Adeline SMAPME Research What We Are About Saving Childrens Lives through Breaking Research Our current focus SMAPME is a rare disease. It gets less rare every month as 1 to 4 cases are diagnosed. Approved 501c3 Private research is finding solutions. Adeline is living in hope of a cure.
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