SMA-PME Research

Follow Message Edit

Your gift will support ongoing medical research leading to development of an effective treatment to counter the ASAH1 mutations which cause SMA-PME and Farber disease, two extremely rare genetic neurodegenerative diseases that lead to premature death in childhood.

ICO

870954362

Facebook

Web

Sign in to see organisation website

Address

Myrtle Beach

Address: 903 Waterbridge Blvd, Myrtle BeachWeb: Sign in to see organisation websiteICO: 870954362

SMA-PME Research SMAPME Research Hope for Adeline SMAPME Research What We Are About Saving Childrens Lives through Breaking Research Our current focus SMAPME is a rare disease. It gets less rare every month as 1 to 4 cases are diagnosed. Approved 501c3 Private research is finding solutions. Adeline is living in hope of a cure.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Natalie

What innovative research strategies can small NGOs implement to raise awareness and funding for rare diseases like SMA-PME?

Like Comment
Catherine

Every child deserves a chance at life! Let’s rally behind SMA-PME Research and support their incredible work to find a cure for these rare diseases. πŸ’™ #HopeForAdeline #SMAAwareness

Like Comment
Dorothy

How can we better support families affected by SMA-PME in their journey for a diagnosis and treatment?

Like Comment
Joanna

So inspired by the dedication of SMA-PME Research! Together, we can shine a light on these rare diseases and bring hope to families in need. 🌟 Please consider donating to help their vital research! #SaveOurChildren

Like Comment
Collected information

Data about organisation

Myrtle Beach

Organisations from SMA-PME Research

2. GRAND STRAND HUMANE SOCIETY INC

Welcome to the official Grand Strand Humane Society Facebook page.

3. Gamma Phi Beta Sorority Inc

We build confident women of character who celebrate sisterhood and make a difference in the world.

4. Rare Species Fund

The Rare Species Fund was established to provide funding to critical on the ground international wil.

5. International Association of Lions Clubs

HTC is a one-stop, local source for all your telecommunications needs - Internet, Video, Mobile, Home Security, Home Phone and Business Solutions.

More from Myrtle Beach

Similar organisations

Similar organisations to SMA-PME Research based on mission, location, activites.

National MPS Society, Inc.

The National MPS Society exists to cure, support, and advocate for MPS and ML.

Ella Foard Foundation for Rett Syndrome

The Ella Foard Foundation for Rett Syndrome was founded by family and friends to champion a cause to find a cure for Rett Syndrome.

Louvenia D Barksdale Sickle Cell Anemia Foundation Inc

Improving the quality of life and care for individuals and families impacted by Sickle Cell Anemia.

More Similar Organisations

Similar Organisations Worldwide

Organisations in the world similar to SMA-PME Research.

AIMS2CURE (uk)

Registered Charity raising funds for research to find a cure for Multiple Sclerosis and through the .

Genetic Cures For Kids Inc (au)

Please help save Tallulah Moon and all kids living with SPG56.

More Similar Organisations Worldwide

Interesting nearby

Interesting organisations close by to residence of SMA-PME Research

GRAND STRAND MIRACLE LEAGUE INC

Offering individuals with disabilities the opportunity to participate in sports.

More Interesting nearby
Join us

Join us and make a difference for the future!

As a teacher, I use Eduo in class to show students how civic engagement works. It’s inspiring and educational. Highly recommend for schools and community groups.

Brooklyn Simmons
Lucy

Clean, community-driven, and full of heart β€” love it.

Brooklyn Simmons
Pamela

Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!

Brooklyn Simmons
Kira

Like Wikipedia for nonprofits β€” but even more inspiring.

Brooklyn Simmons
Paul

Eduo connects you to causes that actually matter to you.

Brooklyn Simmons
Patrick

Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.

Brooklyn Simmons
Lucy
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Nikol 2025-10-24

Hawai'i International Film Festival Names 'Ky Nam Inn,' 'Remathau' Top Winners at 45th Edition

Variety

Like Comment
Ivy 2025-10-24

🌼🐝 Amazing to see urban beekeeping taking root in Newark! Marcellis Counts is transforming a vacant lot into a buzzing haven for honeybees. This initiative not only promotes sustainability but also fosters community connection. Let's support green spaces in our cities! #UrbanBeekeeping #GoodNews

Why this Newark man is reclaiming a vacant lot for beekeeping

Yahoo

Like Comment
Petra 2025-10-24

Exciting progress in medical research! Dr. Graeme F. Woodworth is using ultrasound to open the blood-brain barrier, bringing new hope for glioblastoma patients. #InnovationInHealthcare #GoodNews

Using Ultrasound to Open the Blood-Brain Barrier: New Hope

Medscape

Like Comment