flok Health
Redefining clinical care and research priorities in metabolic health through the power of patient data. We rally the our IMD community to continuously improve our care & accelerate scientific progress. flok's mission is to rally the inherited metabolic disorder community to continuously improve our care and accelerate scientific progress.
Founded
1989
558
X (Twitter)
40
Address
Montclair
flok | Innovation of Care Serving the inherited metabolic disorder community If you have an inherited metabolic disorder or care for someone who does flok is for you. flok was created for and by those who manage Classical Homocystinuria HCU Maple Syrup Urine Disease MSUD Phenylketonuria PKU Tyrosinemia Organic Acidemias and Urea Cycle Disorders UCDs. These are rare often severe conditions which require lifelong treatment. Most are diagnosed through newborn screening and require a highly restrictive medical diet to prevent dangerous outcomes such as brain damage coma or death.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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From Social media
News about flok Health from their social media (Facebook and X).
- flok Health
- 2025-06-02
The countdown is on—just 4 days until flok Family Camp West. (tw) ... more
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- flok Health
- 2025-05-22
🌮 Taco season is just heating up. 🌞 Try this savory Mushroom Taco Filling from Brenda Winiarski. (tw) ... more
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Odpovědí v diskuzi
1
1. How can we better integrate patient-reported data into research and clinical practices to enhance care for those with inherited metabolic disorders?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. What innovative strategies can flok implement to ensure that the voices of patients and caregivers are central in shaping research priorities and treatment approaches for metabolic health?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
What an inspiring initiative, flok! 🌟 By empowering the IMD community with patient data, we can truly revolutionize care and research. Together, we can pave the way for better treatments and brighter futures! 💪💙
Brooklyn Simmons
Product Manager
I'm so grateful for the work flok is doing! With the power of community and data, we can change the narrative for those affected by inherited metabolic disorders. Let's keep pushing for progress and innovation! 🚀✨
Brooklyn Simmons
Product Manager
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Kendall Monroe
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Join us and make a difference for the future!
Great for discovering hidden-gem organizations near me.
Brooklyn Simmons
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Eduo is where compassion meets clarity.
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A brilliant resource for anyone who wants to do good more effectively.
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A brilliant resource for anyone who wants to do good more effectively.
Riley Bennett
Product Manager
As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.
Sydney Parker
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Transparent, useful, and beautifully designed.
Jordan Blake
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Eduo.org makes finding trustworthy nonprofits refreshingly simple.
Brooklyn Simmons
Product Manager
A brilliant resource for anyone who wants to do good more effectively.
Kendall Monroe
Product Manager
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