flok Health

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Redefining clinical care and research priorities in metabolic health through the power of patient data. We rally the our IMD community to continuously improve our care & accelerate scientific progress. flok's mission is to rally the inherited metabolic disorder community to continuously improve our care and accelerate scientific progress.

Founded

1989

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558

X (Twitter)

40

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4011763

Address: PO Box 43552, MontclairWeb: Sign in to see organisation websiteFacebook: flokhealthX (Twitter): flokhealthEmployees: 4Volunteers: 12Revenue: 369785ICO: 943098601

flok | Innovation of Care Serving the inherited metabolic disorder community If you have an inherited metabolic disorder or care for someone who does flok is for you. flok was created for and by those who manage Classical Homocystinuria HCU Maple Syrup Urine Disease MSUD Phenylketonuria PKU Tyrosinemia Organic Acidemias and Urea Cycle Disorders UCDs. These are rare often severe conditions which require lifelong treatment. Most are diagnosed through newborn screening and require a highly restrictive medical diet to prevent dangerous outcomes such as brain damage coma or death.

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Jessica

1. How can we better integrate patient-reported data into research and clinical practices to enhance care for those with inherited metabolic disorders?

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Leon

2. What innovative strategies can flok implement to ensure that the voices of patients and caregivers are central in shaping research priorities and treatment approaches for metabolic health?

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Jane

I'm so grateful for the work flok is doing! With the power of community and data, we can change the narrative for those affected by inherited metabolic disorders. Let's keep pushing for progress and innovation! πŸš€βœ¨

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Valerie

What an inspiring initiative, flok! 🌟 By empowering the IMD community with patient data, we can truly revolutionize care and research. Together, we can pave the way for better treatments and brighter futures! πŸ’ͺπŸ’™

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