Lightning and Love Foundation

Research for Ultra-Rare Genetic Disease | Lightning and Love Foundation

Founder of Lightning and Love foundation and mom to two ultra-rare THAP12 genetic epilepsy disease daughters searching for a cure! https://t.co/ndS61etagM Two sisters battling one Ultra-Rare Disease. We are racing against time to find a cure for Emma and Abby, and to raise awareness for all those suffering from rare disease! Lightning and Love Foundation is a Non-Profit Organization with the vision to raise awareness, advance scientific research through fundraising and advocacy, and find a cure for diseases caused from a mutation in the THAP12 gene ultimately transforming the lives of those affected.
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About Advocacy Research Get Involved Shop Merch News More meet two sweet sisters battling one ultrarare disease Emma and Abby Emma is aa 8 year old little girl who loves music and being around her peers. But she can39t walk or talk and she has many seizures every day. Abbyis a6 year old little girl who is feisty. screaming for attention one minute and giving the biggest cheesy grin the next.

Epilepsy Research
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