🚨 Last Call for KOALA Participation at the Conference! KOALA registration closes this weekend, so don’t miss your chance to take part in this important research opportunity. 📧 To inquire or sign up, email: ASCENDstudy@childrens.harvard.edu Want to learn more first? Join us for a Know Before You Go session on Sunday, June 1st, with BCH research coordinator Jessica Waxler. She’ll explain what to expect, how to prepare, and answer any questions you have. Don’t wait—we’d love to see you there! 📅 June 1st at 3:00 PM Eastern Time 📍 Online via Zoom 🔗 https://www.kif1a.org/events/koala-study-prep-know-before-you-go-what-to-expect-before-the-kand-conference/ (fb)

Dylan Verden and Angie Marostica Fuller are attending the Chan Zuckerberg Initiative Rare As One Conference ~ There are so many (100+) amazing patient advocacy organizations here, along with clinicians, researchers, and rare disease experts! Thanks to everyone for sharing your knowledge and collaborating across diseases, and thanks to CZI for hosting this opportunity! Alone we are rare. Together we are strong. (fb)