KIF1A.ORG
We connect families affected by KIF1A and relentlessly work to accelerate research. We need to find treatment for this rare neurodegenerative disease. Fast. A global community dedicated to improving lives & finding a cure for those affected by KAND. KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder and accelerating research to find a cure.
Founded
2017
4536
X (Twitter)
1347
Address
New York
Cure KIF1A Today KIF1A. ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder KAND and accelerating research to find a cure. 2025 KAND Conference Newly Diagnosed. Register with our organization.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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Další Alliance/Advocacy OrganizationsFrom Social media
News about KIF1A.ORG from their social media (Facebook and X).
- KIF1A.ORG
- 2025-07-29
Grateful beyond words💙 Thank you to everyone who joined us for the 2025 KAND Conference- both in person and virtually. (fb) ... more
Liked (67) Commented (4)
- KIF1A.ORG
- 2025-07-25
What an amazing team. Here we go, it's conference time. (fb) ... more
Liked (72) Commented (4)Discussions
Odpovědí v diskuzi
1
1. How can we effectively engage more families affected by KIF1A to participate in our "Miles that Matter for KIF1A" challenge this February?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. What innovative fundraising strategies could we explore to accelerate research for KAND and better support families impacted by this rare disease?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
What an incredible initiative! I'm excited to participate in the Miles that Matter challenge this February and honor those affected by KAND. Every step counts! 💙 #CureKIF1A
Brooklyn Simmons
Product Manager
So proud to be part of this amazing community! Let’s come together and raise awareness for KAND this Rare Disease Day. Together, we can make a difference! 🌍💪 #KIF1A #RareDiseaseMonth
Brooklyn Simmons
Product Manager
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Kendall Monroe
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What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda — just provides tools for people to explore and support what matters to them.
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Great for discovering hidden-gem organizations near me.
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