KIF1A.ORG

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We connect families affected by KIF1A and relentlessly work to accelerate research. We need to find treatment for this rare neurodegenerative disease. Fast. A global community dedicated to improving lives & finding a cure for those affected by KAND. KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder and accelerating research to find a cure.

Founded

2017

Facebook

4536

X (Twitter)

1347

Address

New York

Address: 1178 Broadway 3rd Floor #3535, New YorkWeb: Sign in to see organisation websiteFacebook: KIF1AX (Twitter): KIF1AEmployees: 2Volunteers: 12Revenue: 229470ICO: 820714729

Cure KIF1A Today KIF1A. ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder KAND and accelerating research to find a cure. 2025 KAND Conference Newly Diagnosed. Register with our organization.

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Martin

What an incredible initiative! I'm excited to participate in the Miles that Matter challenge this February and honor those affected by KAND. Every step counts! 💙 #CureKIF1A

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Eric

So proud to be part of this amazing community! Let’s come together and raise awareness for KAND this Rare Disease Day. Together, we can make a difference! 🌍💪 #KIF1A #RareDiseaseMonth

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Leon

1. How can we effectively engage more families affected by KIF1A to participate in our "Miles that Matter for KIF1A" challenge this February?

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Veronica

2. What innovative fundraising strategies could we explore to accelerate research for KAND and better support families impacted by this rare disease?

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