
Pachyonychia Congenita Fund
PC Project is passionate about helping patients who suffer from PC and advancing research for a cure. PC Project was first recognized as a public charity in the USA in 2004. The goal: Find a cure for Pachyonychia Congenita. As we understand more about PC through larger numbers of patient participants, we realize the cure isn't hiding out there somewhere. In fact, we won't 'find' the answer -- we will have to 'develop' the drug or treatment for PC. We've change the word from 'find' (which is somewhat passive) to 'fighting' for a cure which much better describes the effort required to develop a new treatment. At PC Project, we are fighting for a cure, connecting and helping patients and empowering research. And, we are successful because of the participation from the patient community. Thank you for joining with us as we move forward to success in these areas.
680567493
EIN
2003
Founded
Holladay, UT 84117 USA
Address
pachyonychia.org
Web
pachyonychia
Facebook (1598)
More from Holladay
Center for Resource Management |
|
Come Follow Me Foundation |
|
Sketchnf |
|
Summit Journeys Inc |
Similar social media (1598)
Girl Scouts of Utah1599 |
|
Esa Missionary Society Inc1599 |
|
Cigarra1599 |
|
FINANCIAL SECURITY CREDIT UNION1599 |
|
OREGON IMPACT1599 |
News

Poslední diskuze
Nearby
1
Employee
20
Volunteer
4.5
Reviews
Holladay
Place
About the organization
- 801, E01, G01, H01 -
Alliance/Advocacy Organizations Alliance/Advocacy Organizations Alliance/Advocacy Organizations
23 Vacancy
More Detail