Marshall-Smith Syndrome Organization of the USA Inc
The mission of Marshall-Smith Syndrome Organization of the USA, Inc. is to provide comprehensive family support, advance research on Marshall-Smith Syndrome, and foster advocacy for individuals living with this rare genetic condition.
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932278840
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Legal name of organization: Marshall-Smith Syndrome Organization of the USA
Marshall-Smith Syndrome Organization of the USA, Inc. Our Mission Provide Support Advance Research Advance Research MSS is rare but there is strength in numbers. We strive to provide support and connection for families online and through organized meetups. Advance Research Advance Research Advance Research MSSUSA hosts formal advisory boards to assure equity and perspective in our research efforts. Our partnership with the National Organization of Rare Disorders NORD will open new doors for researching MSS.
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Legal name of organization: Marshall-Smith Syndrome Organization of the USA
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