Marshall-Smith Syndrome Organization of the USA Inc
The mission of Marshall-Smith Syndrome Organization of the USA, Inc. is to provide comprehensive family support, advance research on Marshall-Smith Syndrome, and foster advocacy for individuals living with this rare genetic condition.
ICO
932278840
Web
mss-usa.org
Address
Legal name of organization: Marshall-Smith Syndrome Organization of the USA
Marshall-Smith Syndrome Organization of the USA, Inc. Our Mission Provide Support Advance Research Advance Research MSS is rare but there is strength in numbers. We strive to provide support and connection for families online and through organized meetups. Advance Research Advance Research Advance Research MSSUSA hosts formal advisory boards to assure equity and perspective in our research efforts. Our partnership with the National Organization of Rare Disorders NORD will open new doors for researching MSS.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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Discussions
Odpovědí v diskuzi
1
1. What strategies can we implement to increase awareness and understanding of Marshall-Smith Syndrome within the broader medical community and general public?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can families affected by Marshall-Smith Syndrome best support each other and collaborate to share their experiences and resources through the MSSUSA platform?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Absolutely proud to support MSSUSA and the incredible work you're doing for families impacted by Marshall-Smith Syndrome! Together, we can raise awareness and drive research! 💙 #SupportMSSUSA
Brooklyn Simmons
Product Manager
It's heartwarming to see how MSSUSA is uniting families and advocating for those living with Marshall-Smith Syndrome. Let's keep pushing for more research and support! 🌟 #MSSAwareness #TogetherWeCan
Brooklyn Simmons
Product Manager
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The idea behind Eduo is genius — let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.
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Great for discovering hidden-gem organizations near me.
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Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
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What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda — just provides tools for people to explore and support what matters to them.
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Product Manager
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