Every Link Matters CO
The Every Link Matters foundation was established in January 2021 by Darin & Mary Hunter to raise awareness and funds for KBG syndrome families directly. Because no one fights alone! #EveryLinkMatters #KBGsyndrome #KBG #RareDisease #WeAreRare SUPPORT FAMILIES AFFECTED BY KBG SYNDROME
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Woodstock
Home - Every Link Matters NOONEFIGHTSALONE Darin and Mary Hunter set up Every Link Matters because they struggled with their own daughter Emilees KBG syndrome diagnosis on February 26 2019. The charity was created to raise awareness and funds for children who have been diagnosed and their families who need help with medical and therapy expenses. Instead of using social media they have decided to be the social media outlet and support for families like themselves who are on the KBG journey. Every Link Matters 5th Annual Golf Tournament Every Link Matters is excited to present our 5th Annual Golf Tournament at The Fairways of Canton.
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Fund Raising and/or Fund Distribution Category
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