Superficial Siderosis Research Alliance Inc

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Superficial Siderosis Research Alliance 501(c)(3) dedicated to funding research | Living With SS information and insight on living with superficial siderosis Living with Superficial Siderosisis™ is the digital information publication of the Superficial Siderosis Research Alliance. The SSRA is a 501(c)(3) nonprofit whose mission is advocacy, education, and fundraising for medical research. Our vision is a future where a Superficial Siderosis diagnosis is no longer a life-altering condition. The Superficial Siderosis Research Alliance's mission is education, advocacy, and to seek, raise, and provide funding support for all superficial siderosis medical research for the benefit of every person affected by this ultra-rare neurodegenerative disorder

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842515094

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779

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203

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Waukesha

Address: W238N1645 Rockwood Dr, Suite A, WaukeshaWeb: Sign in to see organisation websiteFacebook: superficialsiderosisresearchallianceX (Twitter): LivingwithSSRevenue: 100953ICO: 842515094

Superficial Siderosis Research Alliance | Empowering Research And Inspiring Hope Superficial Siderosis Symposium 2025 June 1113 2025 Harvard University Cambridge MA Join the Superficial Siderosis Research Alliance SSRA for a threeday symposium dedicated to patients caregivers clinicians and researchers focused on advancing care treatment and research for superficial siderosis. Additional speakers are pending confirmation and will be announced as details are finalized. . Superficial Siderosis Symposium Our FirstEver Superficial Siderosis Symposium 2025 We are thrilled to announce the Superficial Siderosis Symposium 2025 an extraordinary event hosted by the Superficial Siderosis Research Alliance SSRA.

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Michelle

Kudos to the Superficial Siderosis Research Alliance for all the amazing work you do! 🙌 Can't wait to participate in the Trail Grinder Run and help fund important research! 🏃‍♂️💙 #SupportSSRA #HopeForTheFuture

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Nicole

What strategies can we implement to increase community awareness and support for individuals living with superficial siderosis?

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Dorothy

How can we effectively engage and collaborate with researchers and clinicians to advance the understanding and treatment of superficial siderosis?

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Christine

So excited to see the Superficial Siderosis Symposium 2025 coming up! 🚀 Let's raise awareness and support each other in this journey. 🌟 #SuperficialSiderosis #TogetherWeCan

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Waukesha

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Enriching the lives of our residents through service and commitment to family and community.

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