Superficial Siderosis Research Alliance 501(c)(3) dedicated to funding research | Living With SS information and insight on living with superficial siderosis Living with Superficial Siderosisis™ is the digital information publication of the Superficial Siderosis Research Alliance. The SSRA is a 501(c)(3) nonprofit whose mission is advocacy, education, and fundraising for medical research. Our vision is a future where a Superficial Siderosis diagnosis is no longer a life-altering condition. The Superficial Siderosis Research Alliance's mission is education, advocacy, and to seek, raise, and provide funding support for all superficial siderosis medical research for the benefit of every person affected by this ultra-rare neurodegenerative disorder