Superficial Siderosis Research Alliance Inc
Superficial Siderosis Research Alliance 501(c)(3) dedicated to funding research | Living With SS information and insight on living with superficial siderosis Living with Superficial Siderosisis™ is the digital information publication of the Superficial Siderosis Research Alliance. The SSRA is a 501(c)(3) nonprofit whose mission is advocacy, education, and fundraising for medical research. Our vision is a future where a Superficial Siderosis diagnosis is no longer a life-altering condition. The Superficial Siderosis Research Alliance's mission is education, advocacy, and to seek, raise, and provide funding support for all superficial siderosis medical research for the benefit of every person affected by this ultra-rare neurodegenerative disorder
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Superficial Siderosis Research Alliance | Empowering Research And Inspiring Hope Superficial Siderosis Symposium 2025 June 1113 2025 Harvard University Cambridge MA Join the Superficial Siderosis Research Alliance SSRA for a threeday symposium dedicated to patients caregivers clinicians and researchers focused on advancing care treatment and research for superficial siderosis. Additional speakers are pending confirmation and will be announced as details are finalized. . Superficial Siderosis Symposium Our FirstEver Superficial Siderosis Symposium 2025 We are thrilled to announce the Superficial Siderosis Symposium 2025 an extraordinary event hosted by the Superficial Siderosis Research Alliance SSRA.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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- Superficial Siderosis Research Alliance Inc
- 2025-06-17
The Superficial Siderosis Research Alliance (SSRA) Mission https://t. (tw) ... more
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- Superficial Siderosis Research Alliance Inc
- 2025-06-11
RT @LivingwithSS: The viewing links for the 2025 Superficial Siderosis Symposium #neurotwitter #neurology #neurorad https://t. (tw) ... more
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Odpovědí v diskuzi
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What strategies can we implement to increase community awareness and support for individuals living with superficial siderosis?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can we effectively engage and collaborate with researchers and clinicians to advance the understanding and treatment of superficial siderosis?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So excited to see the Superficial Siderosis Symposium 2025 coming up! 🚀 Let's raise awareness and support each other in this journey. 🌟 #SuperficialSiderosis #TogetherWeCan
Brooklyn Simmons
Product Manager
Kudos to the Superficial Siderosis Research Alliance for all the amazing work you do! 🙌 Can't wait to participate in the Trail Grinder Run and help fund important research! 🏃♂️💙 #SupportSSRA #HopeForTheFuture
Brooklyn Simmons
Product Manager
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