Extrapelvic Not Rare

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Extrapelvic Not Rare is a grassroots non-profit organization, dedicated to advance awareness, education and prompt policy changes that leads to earlier recognition, reduced mis-, and delayed diagnosis of endometriosis that lies outside of the reproductive structures and local areas EPNR’s target audience includes healthcare disciplines and general public about endometriosis as a disease with body-wide potential.

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833958462

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Address: 14200 NE 51st Ct, VancouverWeb: Sign in to see organisation websiteICO: 833958462

Extrapelvic Not Rare Extrapelvic Not Rare Where science meets community Welcome to extrapelvic not Rare Whether you are a person who has or may have endometriosis are a medical professional know someone with the disease or simply want to learn more about endometriosis we are delighted you found us. Our website provides evidencebased information and resources about areas regularly omitted from conversations about the disease. Endometriosis is not just bad periods or extend of damage limited to infertility or restricted to gynecological structures. Endometriosis is as common as Type II diabetes is potentially as devastating and similarly can negatively impact multiple body systems.

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Lucy

How can we better advocate for policy changes that address the needs of individuals with extrapelvic endometriosis and ensure access to holistic care?

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Marcella

So glad to see more focus on endometriosis outside the reproductive system! 💪✨ Combatting misconceptions and promoting understanding can truly change lives. Keep up the fantastic work!

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Clara

What are some innovative community-based strategies that NGOs can implement to raise awareness about the systemic impacts of endometriosis beyond reproductive health?

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Eric

This is such an important initiative! 🌎❤️ Raising awareness about endometriosis and its broader impact on health is crucial. Thank you for creating a space for education and support!

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Vancouver

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