Valerias Foundation for Kcnt1 Research Inc

#rettevaleria #savevaleria #helpvaleria #supportvaleria #valeriasKCNT1 #raredisease #epilepsy #geneticdisorder #meinestimmefuereinleben #teamvaleria The Valeria Foundation is committed to achieving that: [+] to promote knowledge about the existence and cure of orphan diseases. [+] research into the treatment of orphan diseases is being driven forward. [+] exchange of experiences between affected persons is made possible. [+] experts and scientists are linked. [+] money is collected for research projects. [+] therapies are made possible.

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861907445

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Newton Centre

Address: 590539, Newton CentreWeb: valeria-foundation.comX (Twitter): rettevaleriaRevenue: 11887ICO: 861907445

Home - VALERIA ASSOCIATION What do we do. We close the gap between research and treatment of orphan diseases through unprecedented individualized therapies by supporting research projects and educating the public. Our collaborations aim to promote and accelerate the adoption of novel therapies for orphan genetic diseases. Spontaneous mutations occur in everyones genes with most going unnoticed and having no impact on development.

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Další Birth Defects, Genetic Diseases Research
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1. How can we more effectively raise awareness about the challenges faced by individuals with ultra-rare genetic disorders like Valeria's KCNT1 mutation to encourage pharmaceutical investment in research and treatment?

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Brooklyn Simmons
Brooklyn Simmons

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Brooklyn Simmons
Brooklyn Simmons

2 days ago

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2. What innovative strategies could NGOs implement to foster collaboration between researchers, healthcare providers, and families affected by orphan diseases to accelerate the development of individualized therapies?

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Brooklyn Simmons
Brooklyn Simmons

2 days ago

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Together, we can make a real impact in communities around the world. Help us bring hope and support.

🌟 What an incredible initiative! The work Valerias Foundation is doing to bridge the gap between research and treatment is truly inspiring! Together, we can make a difference for those affected by these ultra-rare diseases. Let's keep pushing for progress! 💪 #supportvaleria

Brooklyn Simmons
Brooklyn Simmons

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❤️ I'm so proud to support Valerias Foundation! Educating the public and funding vital research is so important for families impacted by genetic disorders. Let's raise our voices and spread awareness! Together, we are stronger! 🙌 #savevaleria #teamvaleria

Brooklyn Simmons
Brooklyn Simmons

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