Rare Disease Company Coalition Inc

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We are a coalition of life science companies committed to discovering, developing & delivering rare disease treatments for the patients we serve. #OneRareVoice THE MISSION OF THE RARE DISEASE COMPANY COALITION IS TO STIMULATE DEVELOPMENT OF AND ACCESS TO RARE DISEASE TREATMENTS.

Founded

2021

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X (Twitter)

508

Address

Washington

Address: 200 Massachusetts Ave NW, WashingtonWeb: Sign in to see organisation websiteX (Twitter): RareCoalitionVolunteers: 25Revenue: 958500ICO: 862999172

Home - Rare Coalition One Rare Voice. We are the Rare Disease Company Coalition. We represent life science companies committed to discovering developing and delivering rare disease treatments for the patients we serve. Our goal is to inform policymakers of the unique challengesand promiseswe face in taking these rare disease drugs from research through development approval and manufacturingand to advocate for government policies that enable positive changes to be realized for the rare disease community.

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Robin

What strategies can the Rare Disease Company Coalition employ to better engage policymakers and the public on the challenges faced by patients with rare diseases?

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Martin

πŸ‘ Thank you for advocating for the rare disease community! It's time to raise awareness and push for the policies that can make a real difference in the lives of patients and their families. Let's keep the momentum going! 🌍✨

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Helen

🌟 So inspired by the work you all are doing! Every effort counts in the journey towards better treatments for those battling rare diseases. Together, we can amplify #OneRareVoice! πŸ’ͺπŸ’œ

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Andrew

How can the coalition leverage partnerships with patient advocacy groups to enhance awareness and support for rare disease therapies?

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