
Home | Myasthenia Gravis Foundation of America
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New York City, NY 10017 United States
myasthenia.org
myastheniaorg
MyastheniaGravisFoundation
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News

How do you deal with confusing, distressing symptoms and a life-changing diagnosis? Some of us might cry. Ron Fredman started writing. He started posting on his Facebook page every few days, chronicling his experiences with myasthenia gravis for friends and family. Ron was honest but also irreverent. He poked fun at hospital food and doctor’s tests. He poked fun at himself. “I want to show that, despite my hurdles, I find a way for good things to happen," Ron shares. "Hope is helpful. So is a chuckle and a confirmation we are not alone.” MGFA published a collection of Ron's essays last year. If you find yourself nodding your head in recognition, let us know which story resonated most for you. As we gear up for MG Awareness Month, these essays are also a great way to explain to your community how MG impacts your every day life. Share them with your network! READ --> (fb)

Southern California: Join us for a free Community Health Fair to learn more about myasthenia gravis management and meet others affected by MG. * Irvine Marriott * Saturday, May 31 from 9 am - 1 pm * Free * Find great resources for managing myasthenia gravis * Hear from neuromuscular specialists, including Drs. Bhavesh Trikamji and Perry B. Shieh of UCLA Register here: https://myasthenia.org/events/orange-county-los-angeles-community-health-fair/ Thank you to all our event vendors and sponsors, especially our presenting partners Alexion, argenx, Johnson & Johnson, and UCB. (fb)

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About the organization
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Search Newly Diagnosed Guidance if yourenewly diagnosed with MG Read More Connect With Others Find the support you need Read More MG Research Latest clinical researchand discoveries Read More Volunteer Today. Get involvedwith MGFA Read More Welcome MGFA is the largest leading patient advocacy organization solely focused on myasthenia gravis. We support those living with MG and create connections for the MG community. Learn more about our mission What is myasthenia gravis.
Nerve, Muscle, and Bone Diseases