E WE Foundation

The E WE Foundation is a U.S.-based 501(c)(3) nonprofit healthcare advocacy organization established in 2019. It focuses primarily on providing resources and support to families affected by Trisomy 18 (Edwards Syndrome) and other rare diseases.

Mission and Vision

The foundation's mission is to support families impacted by Edwards Syndrome and other rare diseases by changing the medical perspective through advocacy, education, and public policy. Its vision includes ensuring equitable access to quality healthcare, resources, health and financial literacy, and disease education for all affected families.

Activities and Programs

The E WE Foundation operates as an accredited continuing education program and offers resources and support to help bridge the gap between diagnosis delivery and care coordination. It emphasizes the importance of access to quality healthcare and economic assistance without bias.

Governance

The organization is led by a board of directors, which includes members such as Kareem Edwards, Kenneth Powe, Shane' Jackson, and Sheyenne Walmsley. The board follows practices that ensure diversity and inclusivity in leadership and governance, including formal orientations and assessments.

Advocacy and Community Engagement

The foundation engages in advocacy efforts and community outreach to raise awareness about Edwards Syndrome and other rare diseases. It aims to create a supportive community for affected families through various programs and educational initiatives.

[1] https://www.rarediseaseday.org/friends/the-e-we-foundation/ [2] https://rarediseases.org/organizations/e-we-foundation/ [3] https://theewefoundation.org [4] https://www.guidestar.org/profile/84-2765554 [5] https://www.volunteermatch.org/search/org1214174.jsp