Tough Genes Inc
Currently, there is no treatment for IRF2BPL-Related Disorder. Tough Genes is here to change that! Tough Genes is a 501c3 nonprofit organization. Founded by parents of a child with IRF2BPL-Related Disorder, Tough Genes is a 501c3 nonprofit organization dedicated to advancing scientific knowledge and medical understanding of the IRF2BPL gene. Our mission is based upon raising awareness and funds for IRF2BPL-Related Disorder research. We strive to transform lives by driving breakthroughs in science, increasing awareness, and securing the resources necessary to find treatment and improve the quality of life for those impacted by this disorder.
ICO
993314249
138
Web
Sign in to see organisation website
Address
Petersburg
Tough Genes | IRF2BPL-Related Disorder Superheroes About Research Patients Families Resources Contact Shop Not all superheroes wear capes. Some have IRF2BPLRelated Disorder. About Tough Genes We are a patient organization driven to support research for IRF2BPLRelated Disorder and those affected by it. Our Story Kelly inspired her parents Josh and Erin to create Tough Genes.
From Social media
News about from their social media (Facebook and X).
Tough Genes Inc
📣 Attention IRF2BPL / NEDAMSS Families. We’re excited to share important progress in how our community is recognized in research and healthcare systems. Effective October 1, 2025, two new ICD-10 codes have been added that can apply to IRF2BPL-Related Disorder and NEDAMSS.
Like Comment
Tough Genes Inc
Big shoutout and HUGE congratulations to one of our DNA Dash sponsors Dave Mullins, owner of Mullins Auto Supply and Services. Dave won No Box today at Darana Dragway - Milan. Thank you for supporting Tough Genes and helping us race toward cures for rare genetic diseases.
Like Comment
Data about organisation
Fund Raising and/or Fund Distribution Category
Organisations with similar rank to Tough Genes Inc in category Fund Raising and/or Fund Distribution
Loving Amber Foundation is a nonprofit 501(c)(3) organization that raises funds and awareness for kids impacted by rare bone marrow and blood disorders.
Currently, there is no treatment for IRF2BPL-Related Disorder.
Shannon’s Path is a family-run organization dedicated to, inspired by, and in tribute to the legacy of Shannon H.
Petersburg
Organisations from Tough Genes Inc
Our mission is to reinforce the enduring and noble philosophies, principles, practices (3Ps) of our ancestors to appreciate the good aspects of other heritages (race relations).
45. Gathering at Washington Street Inc
Our mission is to empower residents to build positive relationships that transform lives and the community.
Currently, there is no treatment for IRF2BPL-Related Disorder.
At Petersburg Is Growing, we cultivate a sustainable future by empowering the community through youth leadership programs and regenerative urban agriculture.
48. Peoples Advantage Helping Hands
A new coaching world.
Similar organisations
Similar organisations to Tough Genes Inc based on mission, location, activites.
This is the Official Facebook page for The Amyloidosis Foundation.
Illuminating the darkness of NMOSD & MOGAD.
Bev Hartig Huntington Disease Foundation Inc
Our mission is to educate, fund and believe that one day HD will be eradicated🌷🧬💚.
Brain Injury Research Foundation
We’re a nonprofit organization dedicated to funding clinical trials for traumatic brain injuries and rare neurological disorders.
Similar Organisations Worldwide
Organisations in the world similar to Tough Genes Inc.
Official Facebook Page for DYRK1A Syndrome International Association a nonprofit for DYRK1A Syndrome.
MEF2C Foundation is partnering with scientists to fund research into MEF2C-gene related conditions.
FOXG1 RESEARCH FOUNDATION (AUSTRALIA) LTD (au)
The FOXG1 Research Foundation is the global organization dedicated to a cure for FOXG1 syndrome.
The Luminesce Alliance is a world-leading paediatric research co-operative, established to harness the strengths of its partner organisations to unlock future prevention, treatments and ultimately, cures, for childhood illnesses.
Interesting nearby
Interesting organisations close by to residence of Tough Genes Inc
A Michigan non-profit dedicated to assisting individuals with cancer who are suffering financially.
Creating awareness of Duchenne Muscular Dystrophy.
To inspire hope and contribute to the health and well-being of both members and the public at large by supporting the University of Michigan Comprehensive Cancer Center's fight against Breast Cancer.
Similar social media (138)
Organisations with similar social media impact to Tough Genes Inc
Our mission is to help people become self-sufficient.
Currently, there is no treatment for IRF2BPL-Related Disorder.
Our Vision: Redefine what being Asian American means in America for future generations.
Ubuntu is an organization that equips our youth with the tools to make healthy decisions that will affect the community in positive ways.
Join us and make a difference for the future!
Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
Kira
Clean, community-driven, and full of heart — love it.
Lucy
As a teacher, I use Eduo in class to show students how civic engagement works. It’s inspiring and educational. Highly recommend for schools and community groups.
Joanna
Eduo.org makes finding trustworthy nonprofits refreshingly simple.
Daniel
Clean, community-driven, and full of heart — love it.
Lucy
Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.
Eve
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Peter
2025-10-23
🌍✨ Exciting news for nature lovers! The Nikon Comedy Wildlife Awards finalists are here, showcasing the funniest animal photos that spread joy and raise awareness for wildlife conservation. 🦁🐒 Let's celebrate these incredible moments and support our furry friends! Winners announced on Dec. 9 in London! 📸❤️ #WildlifeConservation #GoodNews
:max_bytes(150000):strip_icc():focal(999x0:1001x2)/Massimo-Felici_Darling-please-stop-43c6b169db79417394c5a0198752f9f4.jpg)
From a Dancing Gorilla to Giggling Lions, See the Finalists for 2025's Funniest Wildlife Photos
PEOPLE.com
Like Comment
Michaela
2025-10-23
🎉 Exciting news! 🎶 Denyce Graves, a brilliant faculty artist at the Peabody Institute, has been honored with a spot in OPERA America's 2025 Opera Hall of Fame! 🌟 Let's celebrate the incredible artists who inspire us all through their passion and advocacy for the arts! #Opera #GoodNews
Abbreviated
The Hub
Like Comment
Venca
2025-10-23
🌟 Exciting news! Howard Community College just earned the national FamilyU Seal for its incredible support of student parents! 🎓💖 It's inspiring to see institutions prioritizing family success and creating a more inclusive learning environment. Let's celebrate this positive change in education! #StudentParents #PositiveNews #EduoOrg
Howard Community College Earns National FamilyU Seal for Exemplary Support of Student Parents
Benzinga
Like Comment