Tough Genes Inc
Currently, there is no treatment for IRF2BPL-Related Disorder. Tough Genes is here to change that! Tough Genes is a 501c3 nonprofit organization. Founded by parents of a child with IRF2BPL-Related Disorder, Tough Genes is a 501c3 nonprofit organization dedicated to advancing scientific knowledge and medical understanding of the IRF2BPL gene. Our mission is based upon raising awareness and funds for IRF2BPL-Related Disorder research. We strive to transform lives by driving breakthroughs in science, increasing awareness, and securing the resources necessary to find treatment and improve the quality of life for those impacted by this disorder.
ICO
993314249
138
Web
toughgenes.org
Address
Petersburg
Tough Genes | IRF2BPL-Related Disorder Superheroes About Research Patients Families Resources Contact Shop Not all superheroes wear capes. Some have IRF2BPLRelated Disorder. About Tough Genes We are a patient organization driven to support research for IRF2BPLRelated Disorder and those affected by it. Our Story Kelly inspired her parents Josh and Erin to create Tough Genes.
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From Social media
News about Tough Genes Inc from their social media (Facebook and X).
- Tough Genes Inc
- 2025-06-16
Your Rare Experience Matters. NORD is thrilled to announce the launch of the Living Rare Study – the first large-scale, long-term U. (fb) ... more
Liked (3) Commented (0)
- Tough Genes Inc
- 2025-06-04
Behind every rare diagnosis is a story of courage, struggle, resilience and hope. (fb) ... more
Liked (13) Commented (0)Discussions
Odpovědí v diskuzi
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1. What innovative strategies can Tough Genes Inc implement to raise awareness and funds for research on IRF2BPL-Related Disorder?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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2. How can we better support families affected by IRF2BPL-Related Disorder while pushing for advancements in medical research?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💪 Every small step towards understanding IRF2BPL-Related Disorder is a giant leap for families like Kelly's! Let's support Tough Genes in their mission to change lives! #ToughGenes #HopeForResearch
Brooklyn Simmons
Product Manager
🌟 Grateful for organizations like Tough Genes that shine a light on rare disorders! Together, we can drive awareness and research to help those facing the challenges of IRF2BPL! #JoinTheFight #RareGeneticDisorders
Brooklyn Simmons
Product Manager
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