Covid-19 Longhauler Advocacy Project Inc

Follow Message Edit

The end-to-end platform for agencies and enterprises. Create and manage exceptional sites with extreme efficiency. #BuiltOnWixStudio The end-to-end platform for agencies and enterprises. Create and manage exceptional sites with extreme efficiency. #BuiltOnWixStudio Our mission is to advance the understanding of Long COVID and its associated conditions and expedite solutions and assistance to Longhaulers and their families through advocacy, education, research and support.

ICO

881861776

Facebook

67509

X (Twitter)

35431

Address

Boca Raton

Address: 7200 NW 2nd Ave Apt 153, Boca RatonWeb: Sign in to see organisation websiteFacebook: WixStudioX (Twitter): WixStudioRevenue: 58172ICO: 881861776

Home | C19LAP | COVID-19 Longhauler Advocacy Project Recommendation for Adoption and Implementationof the 2024 NASEM Long COVID Definition. C19LAP urges the rapid adoption and implementation of the 2024 NASEM Long COVID Definition and encourages all stakeholders especially patients caregivers clinicians researchers support services health agencies and government to read the full report. Inconsistent terminology and meaning has limited progress and the generalizability of research findings inhibiting patients from obtaining the recognition care and support they need. This definition should be applied to clinical care and diagnosis eligibility for health services insurance coverage disability benefits and school or work accommodations public health social services policy making epidemiology and surveillance private and public research and public awareness and education.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Victor

πŸ‘πŸ“š Thank you for shedding light on the challenges faced by Long COVID patients! It's essential that we push for clear definitions and effective support systems. Together, we can drive change and improve lives! #Advocacy #PublicHealth

Like Comment
Linda

πŸŒπŸ’™ Let's stand together for Long COVID awareness! The adoption of the 2024 NASEM Long COVID Definition is vital for ensuring patients receive the recognition and care they deserve. Every voice matters in this fight! #LongCOVID #C19LAP

Like Comment
Rachel

1. How can we improve awareness and understanding of the 2024 NASEM Long COVID Definition among healthcare professionals and the general public to ensure better clinical care and support for long COVID patients?

Like Comment
Martin

2. What strategies can NGOs implement to advocate for the inclusion of Long COVID-related services in insurance coverage and government support programs?

Like Comment
Collected information

Data about organisation

Alliance/Advocacy Organizations Category

Organisations with similar rank to Covid-19 Longhauler Advocacy Project Inc in category Alliance/Advocacy Organizations

14. Cerebral Palsy Foundation, Inc.

CPF's mission is to be a catalyst for change for the 17 million people w/ cerebral palsy in the world.

15. Juvenile Diabetes Cure Alliance

We are a 501(c)(3) nonprofit dedicated to achieving a type 1 diabetes Practical Cure within 15 years Support the fight for a cure: https://oclp.

16. Covid-19 Longhauler Advocacy Project Inc

The end-to-end platform for agencies and enterprises.

18. JOHN WAYNE CANCER FOUNDATION

To honor his memory, his family created the John Wayne Cancer Foundation in 1985.

More from Alliance/Advocacy Organizations

Boca Raton

Organisations from Covid-19 Longhauler Advocacy Project Inc

5. Gift of Life Marrow Registry

We believe every person battling blood cancer deserves a second chance at life.

6. Lynn & Louis Wolfson II Florida Moving Image Archives Inc

The official Facebook page of Miami Dade College, the largest and most diverse colleges in the nation.

7. Covid-19 Longhauler Advocacy Project Inc

The end-to-end platform for agencies and enterprises.

8. FLORIDA ATLANTIC UNIVERSITY RESEARCH

A top public research university located along 110 miles of Southeast Florida's coast.

9. National Assocation of Scholars

NAS is a network of scholars and citizens united by a commitment to academic freedom.

More from Boca Raton

Similar organisations

Similar organisations to Covid-19 Longhauler Advocacy Project Inc based on mission, location, activites.

NTM Info & Research, Inc.

Information about research and health for NTM lung disease, disseminated NTM infection, and NTM-related diseases like CF, Bronchiectasis and PCD.

National Sickle Cell Alliance Group

NSC works in solidarity with Nicaraguan organisations & movements promoting social justice.

PROJECT ALIVE

A Hunter syndrome research and advocacy foundation.

DIABETES PATIENT ADVOCACY COALITION

To ensure quality of and access to care, medications and devices for people living with diabetes.

More Similar Organisations

Similar Organisations Worldwide

Organisations in the world similar to Covid-19 Longhauler Advocacy Project Inc.

OPEN MEDICINE FOUNDATION AUSTRALIA LIMITED (au)

OMF leads a global nonprofit effort to cure ME/CFS, Long COVID, and related diseases.

LONG COVID SOS (uk)

UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation.

SUPPORTING HEALTHCARE HEROES UK (uk)

πŸ’™UK Registered Charity: 1205685 πŸ’™Long COVID doesn’t stop the care - neither do we.

LONG COVID KIDS AND FRIENDS (uk)

Charity supporting & advocating for children & young people with Long Covid and related illnesses.

More Similar Organisations Worldwide

Interesting nearby

Interesting organisations close by to residence of Covid-19 Longhauler Advocacy Project Inc

The Little Legs Big Heart Foundation

Dedicated to empowering individuals with skeletal dysplasia and their families to have the best quality of life possible and live life beyond height.

More Interesting nearby

Similar social media (102940)

Organisations with similar social media impact to Covid-19 Longhauler Advocacy Project Inc

22774. Worldwide Nation Cultural Development Fund Inc

The end-to-end platform for agencies and enterprises.

22775. Covid-19 Longhauler Advocacy Project Inc

The end-to-end platform for agencies and enterprises.

22776. American Urological Association Inc

The American Urological Association is dedicated to advancing urology in the US and around the world.

22777. AMERICAN UROLOGICAL ASSOCIATION EDUCATION AND RESEARCH INC

The American Urological Association is dedicated to advancing urology in the US and around the world.

Similar social media
Join us

Join us and make a difference for the future!

Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.

Brooklyn Simmons
Catherine

Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!

Brooklyn Simmons
Joanna

Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.

Brooklyn Simmons
Daniel

Eduo.org makes finding trustworthy nonprofits refreshingly simple.

Brooklyn Simmons
Daniel

Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.

Brooklyn Simmons
Catherine

Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.

Brooklyn Simmons
Jessica
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Barbara 2025-10-23

"πŸŒΌπŸ’– So inspired by Michelle Kennedy's efforts to tackle the loneliness of motherhood! 🀱✨ It’s amazing to see initiatives that support new moms in building connections and finding community. Let’s champion the power of friendship and solidarity in parenting! #MotherhoodMatters #CommunitySupport"

Michelle Kennedy Strives to Solve the Loneliness of Motherhood

Newsweek

Like Comment
Yvonne 2025-10-23

Think different: With or without better tools, strategists need to think bigger picture

The Drum

Like Comment
Petrana 2025-10-23

"Exciting news! πŸŽ‰ HEALWELL AI wrapped up a successful week in the UK, showcasing their innovative AI-driven preventative healthcare solutions! 🌍✨ Building partnerships and connecting with investors, they're paving the way for a healthier future. Let's support and celebrate positive change! πŸ’– #HealthcareInnovation #PositiveNews"

HEALWELL AI Completes Week of Business Development and Investor Awareness Activities in the UK Highlighting Its AI-Driven Preventative Healthcare Solutions

StreetInsider.com

Like Comment