Covid-19 Longhauler Advocacy Project Inc
The end-to-end platform for agencies and enterprises. Create and manage exceptional sites with extreme efficiency. #BuiltOnWixStudio The end-to-end platform for agencies and enterprises. Create and manage exceptional sites with extreme efficiency. #BuiltOnWixStudio Our mission is to advance the understanding of Long COVID and its associated conditions and expedite solutions and assistance to Longhaulers and their families through advocacy, education, research and support.
ICO
881861776
67509
X (Twitter)
35431
Address
Boca Raton
Home | C19LAP | COVID-19 Longhauler Advocacy Project Recommendation for Adoption and Implementationof the 2024 NASEM Long COVID Definition. C19LAP urges the rapid adoption and implementation of the 2024 NASEM Long COVID Definition and encourages all stakeholders especially patients caregivers clinicians researchers support services health agencies and government to read the full report. Inconsistent terminology and meaning has limited progress and the generalizability of research findings inhibiting patients from obtaining the recognition care and support they need. This definition should be applied to clinical care and diagnosis eligibility for health services insurance coverage disability benefits and school or work accommodations public health social services policy making epidemiology and surveillance private and public research and public awareness and education.
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Discussions
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1. How can we improve awareness and understanding of the 2024 NASEM Long COVID Definition among healthcare professionals and the general public to ensure better clinical care and support for long COVID patients?
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Brooklyn Simmons
2 days ago
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2. What strategies can NGOs implement to advocate for the inclusion of Long COVID-related services in insurance coverage and government support programs?
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Brooklyn Simmons
2 days ago
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
🌍💙 Let's stand together for Long COVID awareness! The adoption of the 2024 NASEM Long COVID Definition is vital for ensuring patients receive the recognition and care they deserve. Every voice matters in this fight! #LongCOVID #C19LAP
Brooklyn Simmons
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👏📚 Thank you for shedding light on the challenges faced by Long COVID patients! It's essential that we push for clear definitions and effective support systems. Together, we can drive change and improve lives! #Advocacy #PublicHealth
Brooklyn Simmons
Product Manager
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