EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION
THE PRIMARY PURPOSE OF THE ORGANIZATION IS TO FUND MEDICAL RESEARCH TO FIND A CURE FOR EPIDERMOLYSIS BULLOSA. THE EBMRF CURRENTLY FUNDS STUDIES AT MAJOR UNIVERSITIES INCLUDING STANFORD, UNIVERSITY OF MINNESOTA AND USC.
Founded
1990
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Los Angeles
EBMRF WHAT IS EPIDERMOLYSIS BULLOSA. EB is a group of genetic disorders characterized by blister formation after minor trauma to the skin. This family of disorders range in severity from mild to the severely disabling and lifethreatening diseases of the skin. Estimates indicate that as many as 100000 Americans suffer from some form of EB.
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Los Angeles
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National charity supporting people with the painful skin condition, Epidermolysis Bullosa (EB).
DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF CANADA (DEBRA CANADA) (ca)
DEBRA Canada is a voluntary, registered charitable organization dedicated to providing support for families affected by Epidermolysis Bullosa (EB) and to increasing Canadians' awareness of this challenging disease.
CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND) (uk)
Recessive Dystrophic Epidermolysis Bullosa(RDEB) Research.
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