EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION

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THE PRIMARY PURPOSE OF THE ORGANIZATION IS TO FUND MEDICAL RESEARCH TO FIND A CURE FOR EPIDERMOLYSIS BULLOSA. THE EBMRF CURRENTLY FUNDS STUDIES AT MAJOR UNIVERSITIES INCLUDING STANFORD, UNIVERSITY OF MINNESOTA AND USC.

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1990

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Los Angeles

Address: 2757 Anchor Ave, Los AngelesWeb: Sign in to see organisation websiteRevenue: 1354120ICO: 943130081

EBMRF WHAT IS EPIDERMOLYSIS BULLOSA. EB is a group of genetic disorders characterized by blister formation after minor trauma to the skin. This family of disorders range in severity from mild to the severely disabling and lifethreatening diseases of the skin. Estimates indicate that as many as 100000 Americans suffer from some form of EB.

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Margot

❤️ So proud to support the essential work the EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION is doing! Let's come together to spread awareness and fund research for a cure! #HopeForEB

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John

1. What innovative therapies or research developments are currently being explored to improve the quality of life for individuals living with Epidermolysis Bullosa (EB)?

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Martin

👏 What an incredible initiative! Every effort counts in helping those with EB live more comfortable lives. Together, we can make a difference! #EBAwareness #CureEB

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Linda

2. How can community awareness and support initiatives help enhance the lives of those affected by Epidermolysis Bullosa, and what role can NGOs play in this effort?

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Los Angeles

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National charity supporting people with the painful skin condition, Epidermolysis Bullosa (EB).

DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF CANADA (DEBRA CANADA) (ca)

DEBRA Canada is a voluntary, registered charitable organization dedicated to providing support for families affected by Epidermolysis Bullosa (EB) and to increasing Canadians' awareness of this challenging disease.

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