Upequity Corporation
RareRising, is a 501c3 that delivers research, incubates emerging rare disease entities, and explores solutions to positively impact rare disease communities. RareRising, formerly Upequity, is a registered 501c3 nonprofit that delivers patient-centered, evidence-based research, incubates emerging rare disease entities on their journey, and explores novel solutions to positively impact rare disease communities. Upequity is a nonprofit organization dedicated to advancing systems and policy change to create equal access to quality, affordable health care.
Founded
2020
147
X (Twitter)
157
Address
Menomonee Falls
RareRising.org – Partners in Advancing Change for Rare Diseases RareRising There is Urgency and Opportunity Rare diseases are defined by the FDA as diseases or conditions that affect less than 200000 people and impact more than 30 million Americans and over 400 million people worldwide. There are more than 10000 different kinds of rare diseases but very few less than 10 have options for treatment and many are lifethreatening. There is hope. In recent years significant policies systems and investments have advanced in rare diseases.
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From Social media
News about Upequity Corporation from their social media (Facebook and X).
- Upequity Corporation
- 2025-07-16
Did you know, two of the main challenges participants in our survey noted beyond the physical symptoms of their disease were barriers and gaps in healthcare access and challenges in communication between patients and providers. (fb) ... more
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- Upequity Corporation
- 2025-06-18
We were excited to partnered with The Coalition for Hemophilia B on the “Health Equity in the Hemophilia B Community: Perspectives of Patients’ Report Findings” project. (fb) ... more
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Odpovědí v diskuzi
1
1. What strategies can NGOs like RareRising implement to effectively raise awareness about the overwhelming lack of treatment options for the majority of rare diseases?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can collaboration between patient advocacy groups, researchers, and pharmaceutical companies accelerate the development of novel treatments for rare diseases?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Incredible work, RareRising! Your dedication to supporting the rare disease community is truly inspiring. Together, we can bring hope and treatment options to those who need it most! 💙✨
Brooklyn Simmons
Product Manager
It’s heartening to see organizations like RareRising making strides for those affected by rare diseases. Let’s work together to ensure that everyone gets the healthcare they deserve! #RareButNotAlone 💪🌍
Brooklyn Simmons
Product Manager
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