RareRising, is a 501c3 that delivers research, incubates emerging rare disease entities, and explores solutions to positively impact rare disease communities. RareRising, formerly Upequity, is a registered 501c3 nonprofit that delivers patient-centered, evidence-based research, incubates emerging rare disease entities on their journey, and explores novel solutions to positively impact rare disease communities. Upequity is a nonprofit organization dedicated to advancing systems and policy change to create equal access to quality, affordable health care.