Upequity Corporation

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RareRising, is a 501c3 that delivers research, incubates emerging rare disease entities, and explores solutions to positively impact rare disease communities. RareRising, formerly Upequity, is a registered 501c3 nonprofit that delivers patient-centered, evidence-based research, incubates emerging rare disease entities on their journey, and explores novel solutions to positively impact rare disease communities. Upequity is a nonprofit organization dedicated to advancing systems and policy change to create equal access to quality, affordable health care.

Founded

2020

Facebook

147

X (Twitter)

157

Address

Menomonee Falls

Address: N85 W16110 Appleton Ave PO Box 158, Menomonee Falls Web: Sign in to see organisation websiteFacebook: RareRisingX (Twitter): RareRising_OrgEmployees: 1Volunteers: 10Revenue: 370330ICO: 853253125

RareRising.org – Partners in Advancing Change for Rare Diseases RareRising There is Urgency and Opportunity Rare diseases are defined by the FDA as diseases or conditions that affect less than 200000 people and impact more than 30 million Americans and over 400 million people worldwide. There are more than 10000 different kinds of rare diseases but very few less than 10 have options for treatment and many are lifethreatening. There is hope. In recent years significant policies systems and investments have advanced in rare diseases.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Stella

Incredible work, RareRising! Your dedication to supporting the rare disease community is truly inspiring. Together, we can bring hope and treatment options to those who need it most! 💙✨

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Victor

2. How can collaboration between patient advocacy groups, researchers, and pharmaceutical companies accelerate the development of novel treatments for rare diseases?

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Luke

It’s heartening to see organizations like RareRising making strides for those affected by rare diseases. Let’s work together to ensure that everyone gets the healthcare they deserve! #RareButNotAlone 💪🌍

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Upequity Corporation

We were excited to partnered with The Coalition for Hemophilia B on the “Health Equity in the Hemophilia B Community: Perspectives of Patients’ Report Findings” project. You can view the full report on our website https://rarerising. org/rarelab.

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Upequity Corporation

Did you know, two of the main challenges participants in our survey noted beyond the physical symptoms of their disease were barriers and gaps in healthcare access and challenges in communication between patients and providers. Download the full report from our website: https://rarerising. org/rarelab.

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Monica

1. What strategies can NGOs like RareRising implement to effectively raise awareness about the overwhelming lack of treatment options for the majority of rare diseases?

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Health Support Services Category

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