Undiagnosed Diseases Network Foundation (UDNF)
Improving access to diagnosis, research, and care for all with undiagnosed and ultra-rare conditions. Our mission is to improve access to diagnosis, research and care for all with undiagnosed and ultra-rare diseases.
Founded
2021
3469
Web
udnf.org
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Home Page - UDNF About For Patients Making Diagnosis Research Treatments Possible for All A world where no family with an undiagnosed or ultrarare condition has to fight alone for a diagnosis research treatment or support. What is an undiagnosed disease. Patient Navigation Request How can I get a diagnosis. The Latest News from the UDNF Statement on Rare Disease Day Research and Funding UDNF Statement on Rare Disease Day 2025 Cancellation Research Funding and Policy Impacts on the UltraRare and Undiagnosed Community.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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From Social media
News about Undiagnosed Diseases Network Foundation (UDNF) from their social media (Facebook and X).
Update: The UDNF has officially signed on to support this important initiative—and we hope you will too before May 30. (fb) ... more
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Memorial Day Post On this MemorialDay, we pause to remember and honor the brave service members who gave their lives in service to our country. (fb) ... more
Liked (3) Commented (0)Discussions
Odpovědí v diskuzi
1
1. How can we improve the patient navigation process for individuals seeking a diagnosis for undiagnosed diseases?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. What role do community events play in raising awareness and support for families affected by ultra-rare conditions?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Incredible work being done by the UDNF! It’s so important to ensure that no family has to navigate the challenges of undiagnosed diseases alone. 💪💙
Brooklyn Simmons
Product Manager
Thank you, UDNF, for your commitment to improving lives and providing hope. Together, we can make a difference for those facing ultra-rare conditions! 🌟 #TogetherWeCan
Brooklyn Simmons
Product Manager
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Finally, a platform that brings transparency and accessibility to the nonprofit world. Eduo makes it simple to see who’s doing meaningful work and how to get involved.
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Like Wikipedia for nonprofits — but even more inspiring.
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Product Manager
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