Update: The UDNF has officially signed on to support this important initiative—and we hope you will too before May 30! Research!America is circulating a community sign-on letter urging Congress to reject the proposed 38% cut to the NIH budget in the president’s FY26 request. This drastic cut would undermine life-saving research and innovation (fb)

Memorial Day Post On this MemorialDay, we pause to remember and honor the brave service members who gave their lives in service to our country. We also recognize the quiet strength within our undiagnosed and ultra-rare disease community—families who embody perseverance, resilience, and love in the face of profound challenges. Today is a time for reflection, reverence, and gratitude. We remember. We honor. And we thank you. #MemorialDay #RememberAndHonor #GratitudeAndRemembrance #UDNF #RareDiseaseCommunity #UDN #Hope4Diagnosis (fb)