Undiagnosed Diseases Network Foundation (UDNF)

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Improving access to diagnosis, research, and care for all with undiagnosed and ultra-rare conditions. Our mission is to improve access to diagnosis, research and care for all with undiagnosed and ultra-rare diseases.

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2021

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Address: 1012 14th St NW Ste 500, WashingtonWeb: Sign in to see organisation websiteFacebook: UDNForgVolunteers: 18Revenue: 2579825ICO: 873474254

Home Page - UDNF About For Patients Making Diagnosis Research Treatments Possible for All A world where no family with an undiagnosed or ultrarare condition has to fight alone for a diagnosis research treatment or support. What is an undiagnosed disease. Patient Navigation Request How can I get a diagnosis. The Latest News from the UDNF Statement on Rare Disease Day Research and Funding UDNF Statement on Rare Disease Day 2025 Cancellation Research Funding and Policy Impacts on the UltraRare and Undiagnosed Community.

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Anna

Thank you, UDNF, for your commitment to improving lives and providing hope. Together, we can make a difference for those facing ultra-rare conditions! 🌟 #TogetherWeCan

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Undiagnosed Diseases Network Foundation (UDNF)

PEER has taught me how to be a better advocate for myself, my daughter, and for other undiagnosed/rare disease patients. I also have grown in confidence. I used to be ashamed that I was sick and no one knew what was wrong with me.

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Diana

1. How can we improve the patient navigation process for individuals seeking a diagnosis for undiagnosed diseases?

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Michael

2. What role do community events play in raising awareness and support for families affected by ultra-rare conditions?

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Andrew

Incredible work being done by the UDNF! It’s so important to ensure that no family has to navigate the challenges of undiagnosed diseases alone. πŸ’ͺπŸ’™

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