United MSD Foundation

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Our mission is simple, yet powerful: To cure Multiple Sulfatase Deficiency. Founded in 2016, United MSD Foundation is a 501(c)(3) nonprofit organization serving an international community of Multiple Sulfatase Deficiency (MSD) families, researchers, and care providers. We exist to bring awareness to MSD, fund research toward treatment, and support families through education, resources, and community. Our mission is to cure Multiple Sulfatase Deficiency.

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2016

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Biloxi

Address: P.O. Box 806, BiloxiWeb: Sign in to see organisation websiteFacebook: CUREMSDEmployees: 9Volunteers: 115Revenue: 305138ICO: 813669443

United MSD Foundation | Multiple Sulfatase Deficiency | Cure MSD United MSD Foundation Finding a Cure Join the team committed to finding a cure for MSD Zebra Run March 29 2025 Bespoke Award A PublicPrivate Partnership 2024 Conference Recap of the biennial conference Together We Can Cure MSD Founded in 2016 United MSD Foundation is a registered 501c3 nonprofit organization serving an international community of Multiple Sulfatase Deficiency families researchers and care providers. We exist to bring awareness to MSD fund research toward treatment and support families through education resources and community. What is MSD. Multiple Sulfatase Deficiency MSD is a rare genetic progressive neurodegenerative disease caused by the build up of cellular waste throughout the body leading to neurologic regression and multisystemic symptoms.

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United MSD Foundation

Are you signed up for our monthly e-newsletter. May's newsletter is out and it's filled with information on our AAV9 gene therapy trials, MSD World Day, and more. Sign up here: .

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Andrew

1. What innovative fundraising strategies can be implemented to support ongoing research for Multiple Sulfatase Deficiency?

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Monica

2. How can we enhance community support and resources for families affected by Multiple Sulfatase Deficiency in different countries?

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United MSD Foundation

UMSDF Executive Director Sarah Cortell Vandersypen is at the #ASGCT Annual meeting this week in New Orleans, and is pictured here with Dean Suhr from MLD Foundation and Scott Loiler from National MPS Society. Look for her presentation later this week. #MSD #RareDisease.

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Martin

Excited for the upcoming Zebra Run on March 29, 2025! Can't wait to see our community come together for such an important cause. Let's show our support and raise awareness for Multiple Sulfatase Deficiency! πŸ¦“πŸ’–

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Peter

So proud to support the United MSD Foundation! Together, we can make a difference and bring hope to families affected by MSD. Let’s keep fighting for a cure! πŸ’™πŸ’ͺ

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Biloxi

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