Sickle Cell Medical Advocacy Inc

Our mission is to advocate for transformative and quality healthcare for Sickle Cell patients. At Sickle Cell Medical Advocacy a medical advocate virtually accompanies a patient with Sickle Cell disease into the hospital/ER during a pain crisis. The advocate provides information for Sickle Cell crisis management to healthcare providers. Sickle Cell Medical Advocacy (SCMA) was created by Sickle Cell patients for Sickle Cell patients. Our mission is to advocate for transformative and quality health care for sickle cell disease (SCD) patients. Founded in 2021 by Simone Uwan MD, a physically disabled, retired physician living with SCD and teaching authority in the SCD community, SCMA is the only nonprofit to take a nationwide approach to medical advocacy and patient education. SCMA trains volunteers nationwide and pairs them with SCD patients. Advocates virtually accompany patients to the emergency department/hospital to respectfully advocate for them, to improve patient health care outcomes. They also serve as a resource to health care providers who are not familiar with the updated treatments or management of the disease.