Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop
We are dedicated to amplifying patient voices, and one day meeting the first survivor of ALSP. The mission of Sisters’ Hope Foundation is to support and empower families impacted by Adult-onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP) by: * educating the public to increase awareness around this rare disease * advocating for further research and funding to improve treatment options * connecting patients and families with this diagnosis to build community and support * providing financial assistance and resources to those in need Additional names used: HDLS, CSF1R related leukoencephalopathy (CRL), POLD
Founded
2022
915
Web
sistershopefoundation.org
Address
Myerstown
Sisters' Hope Foundation ALSP ALSP. Support. Awareness. Advocacy.
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Discussions
Odpovědí v diskuzi
1
1. What strategies can be implemented to increase public awareness about ALSP and its impact on families affected by the condition?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we effectively advocate for more research funding and improved treatment options for ALSP patients?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
🌸 Together, we can make a difference! Thank you, Sisters Hope Foundation, for your unwavering support and advocacy for ALSP. Let's keep spreading awareness and fighting for a cure! 💪💖
Brooklyn Simmons
Product Manager
👏 It's so inspiring to see the work being done by the Sisters Hope Foundation! Every step towards awareness and support truly counts. Excited for the upcoming virtual support group! 🌍💕
Brooklyn Simmons
Product Manager
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