Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop
We are dedicated to amplifying patient voices, and one day meeting the first survivor of ALSP. The mission of Sisters’ Hope Foundation is to support and empower families impacted by Adult-onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP) by: * educating the public to increase awareness around this rare disease * advocating for further research and funding to improve treatment options * connecting patients and families with this diagnosis to build community and support * providing financial assistance and resources to those in need Additional names used: HDLS, CSF1R related leukoencephalopathy (CRL), POLD
Founded
2022
915
Web
Sign in to see organisation website
Address
Myerstown
Sisters' Hope Foundation ALSP ALSP. Support. Awareness. Advocacy.
From Social media
News about from their social media (Facebook and X).
Data about organisation
Specifically Named Diseases Category
Organisations with similar rank to Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop in category Specifically Named Diseases
256. Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop
We are dedicated to amplifying patient voices, and one day meeting the first survivor of ALSP.
GAIA VF promotes the prevention of infectious diseases (HIV, TB, and HPV), while working on the development of globally relevant, globally accessible vaccines that can be distributed on a not-for-profit basis in the developing world.
Myerstown
Organisations from Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop
More from MyerstownSimilar organisations
Similar organisations to Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop based on mission, location, activites.
Cornelia de Lange Syndrome Foundation, Inc.
This page is where people can connect with each other and the CdLS Foundation staff.
Pursuing a cure for cystic fibrosis and supporting people with CF to live long, fulfilling lives.
Providing help & hope for people living with ALS and their families in Connecticut.
Aplastic Anemia and MDS International Foundation
Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH.
Similar Organisations Worldwide
Organisations in the world similar to Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop.
ALSAGER COMMUNITY SUPPORT (uk)
ACSC provides free, confidential help, support, information & advice for people in Alsager & district.
ALS SOCIETY OF SASKATCHEWAN, INC. (ca)
A provincial organization providing people with ALS and their families with medical equipment, resou.
The world’s leading platform for charity giving.
Interesting nearby
Interesting organisations close by to residence of Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop
Yash Gandhi Foundation for Finding A Cure for I-Cell
The mission of the Yash Gandhi Foundation is to raise awareness, build patient advocacy and sustain research efforts into finding a cure for Mucolipidosis II (I-Cell Disease).
Camp Setebaid is a camp for children and teens who happen to have Type 1 Diabetes.
Scarring Alopecia Foundation (SAF) is a nonprofit public charity organization and the world's only v.
The 521 Club of Lancaster PA is here to give those in recovery a place for fun, fellowship & sobriety.
Lyme Disease Association of Southeastern Pennsylvania Inc
The LDASEPA, now LymeBasics.
Similar social media (915)
Organisations with similar social media impact to Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop
VIP Services, Inc.
171559. Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop
We are dedicated to amplifying patient voices, and one day meeting the first survivor of ALSP.
171560. Light of the Comforter Ministries Inc
Prophetic Ministry of Inner Healing/Deliverance to bring Christ's Love to the lost and broken world.
Basin Street Regulars is non-profit a 501c3 tax exempt organization dedicated to the legacy of jazz.
Join us and make a difference for the future!
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Did you know there might be unclaimed funds waiting for you? 💰 7 On Your Side is here to help you track down that lost money from old accounts or policies. Let’s not let it end up with the government! Check it out and see what’s yours. #GoodNews #FinancialWellbeing #EduoOrg
7 On Your Side helps you find your unclaimed funds
Yahoo
Like Comment