Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop
We are dedicated to amplifying patient voices, and one day meeting the first survivor of ALSP. The mission of Sisters’ Hope Foundation is to support and empower families impacted by Adult-onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP) by: * educating the public to increase awareness around this rare disease * advocating for further research and funding to improve treatment options * connecting patients and families with this diagnosis to build community and support * providing financial assistance and resources to those in need Additional names used: HDLS, CSF1R related leukoencephalopathy (CRL), POLD
Founded
2022
915
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Myerstown
Sisters' Hope Foundation ALSP ALSP. Support. Awareness. Advocacy.
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We are dedicated to amplifying patient voices, and one day meeting the first survivor of ALSP.
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Myerstown
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