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watch4wegeners.org

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Address: 1122 Marfield Dr, NazarethWeb: watch4wegeners.orgICO: 920649278

Home | Watch 4 Wegeners It could save a life. Home Sarahx27s Story About Our Board Contact Us Run To Raise Testimonials More Watch 4 Wegeners It Could Save a Life Our daughter Sarah River Whitmire was a college student in pharmacy school when she died suddenly at age 20 from complications of undiagnosed Granulomatosis with Polyangiitis GPA also known as Wegener39s Disease a rare autoimmune disease that no one knew she had. Please join our fight to help others get a timely diagnosis and save lives. Our Mission Watch 4 Wegeners is a nonprofit organization with a mission of increasing awareness in the general public about a potentially fatal disease that is often under or misdiagnosed.

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Odpovědí v diskuzi

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1. What strategies can we implement to effectively raise awareness about Granulomatosis with Polyangiitis in communities that may not have access to comprehensive healthcare resources?

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Brooklyn Simmons
Brooklyn Simmons

2 days ago

Odpovědí v diskuzi

1

2. How can we collaborate with healthcare providers to ensure that they are better equipped to identify and diagnose rare diseases like Wegener's Disease in their practice?

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Brooklyn Simmons
Brooklyn Simmons

2 days ago

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Together, we can make a real impact in communities around the world. Help us bring hope and support.

💖 Thank you for sharing Sarah's story and raising awareness about Wegener’s Disease. It's heartbreaking to think so many may suffer from this undiagnosed condition. Let’s spread the word and save lives together! 💪✨

Brooklyn Simmons
Brooklyn Simmons

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🌟 What an important mission! It's so crucial that we educate ourselves and others about rare diseases like Granulomatosis with Polyangiitis. Together, we can make a difference and help those in need get diagnosed in time. Keep up the amazing work! 💚🌍

Brooklyn Simmons
Brooklyn Simmons

Product Manager

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