Loeys-Dietz Syndrome Foundation
The LDSF is a 501(c)3 non-profit organization organization dedicated to:--encouraging education about Loeys-Dietz syndrome and related connective tissue disorders to medical professionals and lay communities in order to aid in identification, diagnosis and treatment of Loeys-Dietz syndrome--fostering research about Loeys-Dietz syndrome--providing a support network, for individuals, parents and families affected by Loeys-Dietz syndrome
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651306978
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loeysdietz.org
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Loeys-Dietz Syndrome Foundation This March were celebrating 20 years since LoeysDietz Syndrome was first identified. Join us as we raise awareness share stories and support those affected. Together we honor two decades of progress and continue advocating for the LDS community. Our purpose is to provide information about what LoeysDietz syndrome LDS is and to provide hope for those impacted by the condition.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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Discussions
Odpovědí v diskuzi
1
What are some effective ways we can increase awareness and understanding of Loeys-Dietz Syndrome in our communities over the next year?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can we engage more families affected by Loeys-Dietz Syndrome in our events and support groups to foster a stronger sense of community?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Congratulations on 20 years of making a difference in the lives of those affected by Loeys-Dietz Syndrome! Your efforts to raise awareness and provide support are truly inspiring. ❤️✨
Brooklyn Simmons
Product Manager
So grateful for the Loeys-Dietz Syndrome Foundation and all the work you're doing! Together, we can continue to spread awareness and advocate for the LDS community. Let's keep supporting each other! 💪🌍
Brooklyn Simmons
Product Manager
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