CureSHANK

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CureSHANK's mission is to accelerate the development of treatments and cures for Phelan-McDermid Syndrome and other SHANK-related disorders. CureSHANK has a singular purpose: To accelerate the development of treatments for Phelan-McDermid Syndrome and SHANK-related disorders. Our approach is to identify and fund projects that overcome critical barriers to successful drug development and to coordinate scientific efforts to improve efficiency and speed in the field.

Founded

2019

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0

X (Twitter)

308

Address

Beverly Hills

Address: 433 N. Camden Drive, Suite 1100, Beverly HillsWeb: Sign in to see organisation websiteX (Twitter): cureshankVolunteers: 4Revenue: 464972ICO: 842240648

CureSHANK Acceleratinglifetransformingtherapies What CureSHANK Does CureSHANK is a research advocacy organization expediting lifechanging therapies for PhelanMcDermid syndrome PMS a highly disabling neurodevelopmental disorder caused by pathogenic changes to the SHANK3 gene. We work toward this goal by funding targeted research and holding scientific meetings to connect diverse stakeholders. CureSHANKs strategic priorities are projects that help to bridge the translational research gap between basic science and successful clinical trials. We identify and fund projects related to drug discovery and design preclinical development and one day early phase clinical trials.

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Sarah

What strategies can CureSHANK implement to enhance collaboration between research institutions and pharmaceutical companies for the development of new therapies?

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Irene

How can we better engage the community of families affected by Phelan-McDermid syndrome in the research process to ensure their needs and perspectives are addressed?

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Mark

Absolutely inspired by the incredible work CureSHANK is doing! Together, we can bring hope and healing to families affected by Phelan-McDermid Syndrome. đź’™

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Pamela

It's amazing to see how CureSHANK is bridging the gap between research and real-world solutions! Excited to support this mission for a brighter future for all affected by SHANK-related disorders! 🌟

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