Jack's Corner Foundation Inc.
Jack’s Corner is a nonprofit organization dedicated to improving the quality of life and finding a cure for children with SPG50 through the acceleration of gene therapy treatments, funding of research, and raising awareness of the disease. SPG50 is an ultra-rare neurodegenerative disease that affects children. The disease causes spasticity that starts in chldren's legs, slowly taking away their ability to walk. The spasticity then takes away their ability to use their hands, and ultimately, their mental capacity.
Founded
2022
Web
jackscorner.org
Address
Southport
Jack's Corner | Cure SPG50 HOPE FOR A Cure is Here Children with SPG50 need your help to get treatment what is spg50. Spastic Paraplegia 50 or SPG50 is an ultrarare neurodegenerative disease that affects children. The disease causes spasticity that starts in childRENs legs slowly taking away their ability to walk. The spasticity then takes away their ability to use their hands and ultimately their mental capacity.
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We fund research and education to accelerate cures for rare genetic diseases that affect children.
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Category Birth Defects, Genetic Diseases
Další Birth Defects, Genetic Diseases
Discussions
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1. What strategies can our community implement to raise awareness and funds for the gene therapy Melpida to ensure that every child with SPG50 has access to the treatment they need?
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Brooklyn Simmons
2 days ago
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2. How can we effectively collaborate with medical and research institutions to expedite the development and distribution of therapies for rare diseases like SPG50?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Together we can make a difference! Let's support Jack's Corner Foundation and help children with SPG50 get the treatment they deserve. 💙 #HopeForACure #SPG50Awareness
Brooklyn Simmons
Product Manager
I just donated to Jack's Corner Foundation! Every little bit counts in the fight against SPG50. Let’s spread the word and help these brave kids! 🙌❤️ #CureSPG50 #GeneTherapy
Brooklyn Simmons
Product Manager
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