LHON Collective

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LHON Collective is a global initiative dedicated to accelerating progress toward a cure for Leber Hereditary Optic Neuropathy (LHON) while improving the lives of people living with LHON.

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882257719

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Address: PO Box 3680, San DiegoWeb: Sign in to see organisation websiteRevenue: 76260ICO: 882257719

Home | lhon Home LHON 101 First Steps Living With LHON Community Register Research Conference Get Involved More Leber Hereditary Optic Neuropathy causes sudden severe painless loss of central vision usually first in one eye then within a few months in the other. Adjusting to LHON Losing central vision is scary. Figuring out what to do when it happens is confusing and there are many issues to address all at once. This site was created by a family affected by LHON.

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Terry

What resources or strategies have members of the LHON community found most helpful in adjusting to the changes brought about by vision loss?

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John

How can NGOs improve awareness and support for individuals and families affected by Leber Hereditary Optic Neuropathy in underserved communities?

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Kate

So grateful for the LHON Collective and the support they provide! It’s amazing to see such a strong community coming together to help each other through tough times. ❤️

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Sarah

Thank you for sharing your journey and resources! It’s inspiring to see families turn their challenges into hope for others. Together, we can raise awareness and support each other! 🌟

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San Diego

Organisations from LHON Collective

1. SUSAN G KOMEN BREAST CANCER FOUNDATION

Our vision is a world without breast cancer.

2. Foundation of the Zoologicalsociety of San Diego

The San Diego Zoo is operated by the international non-profit San Diego Zoo Wildlife Alliance.

3. Zoological Society of San Diego DBA San Diego Zoo Wildlife Alliance

The San Diego Zoo is operated by the international non-profit San Diego Zoo Wildlife Alliance.

4. Morris Cerullo World Evangelism

The Legacy of Morris Cerullo is to "Build God an Army" and empower believers to fulfill their destiny.

5. TIJUANA RIVER VALLEY ANIMAL RESCUE

We respond to the world’s worst humanitarian crises and help people to survive, recover & rebuild.

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For 220 years, our charity has been a lifeline for thousands of vision impaired people throughout Norfolk, offering practical and emotional support and supporting people living with sight loss to lead more fulfilling, independent lives.

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